McPherson Amy C, McAdam Laura, Keenan Sarah, Schwellnus Heidi, Biddiss Elaine, DeFinney Andrea, English Kirsten
a Bloorview Research Institute , Toronto , Ontario , Canada.
b Dalla Lana School of Public Health and Rehabilitation Sciences Institute, University of Toronto , Toronto , Ontario , Canada.
Dev Neurorehabil. 2018 Feb;21(2):121-130. doi: 10.1080/17518423.2017.1289271. Epub 2017 Mar 8.
To evaluate the feasibility and acceptability of a coaching intervention (Solution-Focused Coaching in pediatric rehabilitation [SFC-Peds]) related to physical activity and diet in males with Duchenne muscular dystrophy.
A pre-post design was employed. Participants had five coaching sessions over 8 weeks. The first session was face-to-face, followed by four virtual sessions. Feasibility criteria included recruitment rates, attrition, and intervention fidelity. The Canadian Occupational Performance Measure (COPM) and Goal Attainment Scaling (GAS) were employed to look at outcome trends. The acceptability was assessed using a survey.
Five males (11-19 years) participated. All feasibility criteria were met. Clinically significant increases were observed for GAS and COPM scores. Participants reported SFC-Peds to be acceptable. Broad barriers and facilitators to coaching success were identified.
A SFC-Peds intervention for health promotion is feasible and acceptable in children with DMD and their families. A rigorous efficacy study assessing SFC-Peds intervention is warranted.
评估一种与身体活动和饮食相关的指导干预措施（杜氏肌营养不良症男性患者的聚焦解决方案指导[SFC-Peds]）的可行性和可接受性。
采用前后对照设计。参与者在8周内进行了5次指导课程。第一次课程是面对面的，随后是4次虚拟课程。可行性标准包括招募率、损耗率和干预保真度。使用加拿大职业表现测量法（COPM）和目标达成量表（GAS）来观察结果趋势。通过一项调查评估可接受性。
5名男性（11 - 19岁）参与。所有可行性标准均得到满足。观察到GAS和COPM分数有临床显著提高。参与者报告称SFC-Peds是可接受的。确定了指导成功的广泛障碍和促进因素。
SFC-Peds健康促进干预措施在杜氏肌营养不良症患儿及其家庭中是可行且可接受的。有必要进行一项严格的疗效研究来评估SFC-Peds干预措施。
