关注自主性：在儿科康复护理中使用“成长技能”。
Focus on autonomy: Using 'Skills for Growing Up' in pediatric rehabilitation care.
机构信息
Department of Rehabilitation Medicine, Erasmus University Medical Centre, Rotterdam, The Netherlands.
Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands.
出版信息
J Pediatr Rehabil Med. 2020;13(2):161-167. doi: 10.3233/PRM-190618.
PURPOSE
Youth with disabilities face challenges regarding achieving autonomy. The 'Skills for Growing Up' tool was adapted for use in Dutch pediatric rehabilitation (SGU-D) to support development of autonomy. This study presents the experiences with the SGU-D tool.
METHODS
The SGU-D was implemented in 18 settings, of which 4 participated in the evaluation. Rehabilitation professionals were trained in the use of the SGU-D. In a qualitative study, participants were interviewed for their opinions regarding the tool.
RESULTS
Experience with the SGU-D was evaluated in 11 youth with disabilities, 11 parents and 8 rehabilitation professionals. They perceived the SGU-D as a helpful tool: i) to support development of autonomy, ii) to focus on future perspectives, and iii) to facilitate communication with family and rehabilitation professionals. Additional support from rehabilitation professionals on using the SGU-D was appreciated.
CONCLUSION
Youth with disabilities, their parents and rehabilitation professionals value the SGU-D as a practical tool for working on autonomy, and to identify important areas of development.
目的
残疾青年在实现自主性方面面临挑战。“成长技能”工具经过改编，可用于荷兰儿科康复（SGU-D），以支持自主性的发展。本研究介绍了 SGU-D 工具的使用经验。
方法
SGU-D 在 18 个环境中实施，其中 4 个参与了评估。康复专业人员接受了使用 SGU-D 的培训。在一项定性研究中，对参与者进行了访谈，以了解他们对该工具的看法。
结果
对 11 名残疾青年、11 名家长和 8 名康复专业人员的 SGU-D 使用经验进行了评估。他们认为 SGU-D 是一个有用的工具：i）支持自主性的发展，ii）关注未来的前景，iii）促进与家庭和康复专业人员的沟通。对康复专业人员在使用 SGU-D 方面提供额外支持表示赞赏。
结论
残疾青年、他们的父母和康复专业人员认为 SGU-D 是一个实用的工具，可用于自主性的工作，以及确定重要的发展领域。
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