Department of Rehabilitation Medicine, Erasmus University Medical Centre, Rotterdam, The Netherlands.
Research Centre Innovations in Care, Rotterdam University of Applied Sciences, Rotterdam, The Netherlands.
J Pediatr Rehabil Med. 2020;13(2):161-167. doi: 10.3233/PRM-190618.
Youth with disabilities face challenges regarding achieving autonomy. The 'Skills for Growing Up' tool was adapted for use in Dutch pediatric rehabilitation (SGU-D) to support development of autonomy. This study presents the experiences with the SGU-D tool.
The SGU-D was implemented in 18 settings, of which 4 participated in the evaluation. Rehabilitation professionals were trained in the use of the SGU-D. In a qualitative study, participants were interviewed for their opinions regarding the tool.
Experience with the SGU-D was evaluated in 11 youth with disabilities, 11 parents and 8 rehabilitation professionals. They perceived the SGU-D as a helpful tool: i) to support development of autonomy, ii) to focus on future perspectives, and iii) to facilitate communication with family and rehabilitation professionals. Additional support from rehabilitation professionals on using the SGU-D was appreciated.
Youth with disabilities, their parents and rehabilitation professionals value the SGU-D as a practical tool for working on autonomy, and to identify important areas of development.
残疾青年在实现自主性方面面临挑战。“成长技能”工具经过改编，可用于荷兰儿科康复（SGU-D），以支持自主性的发展。本研究介绍了 SGU-D 工具的使用经验。
SGU-D 在 18 个环境中实施，其中 4 个参与了评估。康复专业人员接受了使用 SGU-D 的培训。在一项定性研究中，对参与者进行了访谈，以了解他们对该工具的看法。
对 11 名残疾青年、11 名家长和 8 名康复专业人员的 SGU-D 使用经验进行了评估。他们认为 SGU-D 是一个有用的工具：i）支持自主性的发展，ii）关注未来的前景，iii）促进与家庭和康复专业人员的沟通。对康复专业人员在使用 SGU-D 方面提供额外支持表示赞赏。
残疾青年、他们的父母和康复专业人员认为 SGU-D 是一个实用的工具，可用于自主性的工作，以及确定重要的发展领域。
