Wentzell Emily
a Department of Anthropology , University of Iowa , Iowa City , IA , USA.
Anthropol Med. 2017 Dec;24(3):334-349. doi: 10.1080/13648470.2017.1284999. Epub 2017 Mar 15.
Recent research suggests that health surveillance experiences like clinical trial participation might have unanticipated social consequences. I investigate how evangelical Christians participating in longitudinal, observational sexual health research incorporate that long-term medical surveillance into their religious practice. This exploratory research focuses on Mexican Cristianos' participation in the Cuernavaca arm of the multinational 'Human Papillomavirus in Men' ('HIM') study, which tested men for the common and usually asymptomatic sexually transmitted infection human papillomavirus (HPV) over time. I draw on interviews with heterosexual male research participants and their female partners throughout their medical research involvement, and data from church-based participant observation, to understand how couples framed the HIM study as an arena for performing piety. I argue that evangelical understandings of piety as moral practice encouraged participants to view long-term sexual health surveillance as assistance for living out the health, gender, and marital behaviors promoted by their congregations. This finding suggests that health research designers and ethics committees should consider the health and social outcomes of research participants' agentive incorporation of religious observance into study protocols.
近期研究表明，诸如参与临床试验之类的健康监测经历可能会产生意想不到的社会后果。我研究了参与纵向观察性性健康研究的福音派基督徒如何将这种长期医疗监测纳入他们的宗教实践。这项探索性研究聚焦于墨西哥基督徒参与多国“男性人乳头瘤病毒”（“HIM”）研究的库埃纳瓦卡分支，该研究长期对男性进行常见且通常无症状的性传播感染——人乳头瘤病毒（HPV）检测。我通过对异性恋男性研究参与者及其女性伴侣在整个医学研究参与过程中的访谈，以及基于教会的参与观察数据，来了解这些夫妇如何将HIM研究构建为一个践行虔诚的场所。我认为，福音派将虔诚理解为道德实践，这促使参与者将长期的性健康监测视为对践行其教会所倡导的健康、性别和婚姻行为的一种帮助。这一发现表明，健康研究设计者和伦理委员会应考虑研究参与者将宗教仪式主动纳入研究方案所带来的健康和社会后果。
