Hansen Alice Ørts, Kristensen Hanne Kaae, Cederlund Ragnhild, Lauridsen Henrik Hein, Tromborg Hans
a Department of Clinical Research , University of Southern Denmark , Odense , Denmark.
b Department of Orthopedic Surgery , Odense University Hospital , Odense , Denmark.
Disabil Rehabil. 2018 Jun;40(13):1542-1552. doi: 10.1080/09638288.2017.1301577. Epub 2017 Mar 21.
The objectives of this study were to investigate perceptions of client-centred practice among Danish patients with hand-related disorders engaged in rehabilitation at outpatient clinics, and to decide on domains to serve as a conceptual foundation for item generation in the development of a new, standardized questionnaire to evaluate the experience of client-centredness among patients with hand-related disorders.
Focus group interviews were held with 25 patients with hand-related disorders from six outpatient hand clinics in Denmark. Deductive content analysis was used to decide on domains for item generation.
Patients found that information was paramount in understanding their situation and to feel empowered and motivated. They attached importance to participation in decision making so that rehabilitation was considered meaningful. Moreover, they thought rehabilitation should be individualized by taking their life situations and personalities into account. Six domains were found to be central to client-centred practice: patient participation in decision making, client-centred education, evaluation of outcomes from patient's perspective, emotional support, cooperation and coordination, and enabling occupation.
The domains can be used in the further development of a Danish questionnaire to evaluate the experiences of client-centredness among patients engaged in rehabilitation at outpatient clinics for hand-related disorders. Implications for rehabilitation Patients with hand-related disorders wish for rehabilitation to be tailored to individual needs. The patient's life situation and personality, including coping ability, are important factors to consider in rehabilitation planning, interventions, and evaluations. Patients with hand-related disorders attach importance to information and require health professionals' support to manage their activities of everyday life. Patients with hand-related disorders ask for participation and shared decision making in rehabilitation planning.
本研究的目的是调查丹麦手部相关疾病患者在门诊进行康复治疗时对以患者为中心的实践的看法，并确定一些领域，为开发一种新的标准化问卷生成项目提供概念基础，该问卷用于评估手部相关疾病患者的以患者为中心的体验。
对来自丹麦六家手部门诊的25名手部相关疾病患者进行了焦点小组访谈。采用演绎性内容分析法来确定生成项目的领域。
患者发现信息对于了解自身状况以及感到有力量和动力至关重要。他们重视参与决策，以便康复被认为是有意义的。此外，他们认为康复应该根据他们的生活状况和个性进行个性化定制。发现六个领域对于以患者为中心的实践至关重要：患者参与决策、以患者为中心的教育、从患者角度评估结果、情感支持、合作与协调以及促进职业活动。
这些领域可用于进一步开发丹麦问卷，以评估手部相关疾病患者在门诊康复治疗中的以患者为中心的体验。对康复的启示 手部相关疾病患者希望康复能够根据个人需求进行定制。患者的生活状况和个性，包括应对能力，是康复计划、干预措施和评估中需要考虑的重要因素。手部相关疾病患者重视信息，并需要卫生专业人员的支持来管理他们的日常生活活动。手部相关疾病患者要求在康复计划中参与并共同决策。
