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患有亚当序列的新生儿的麻醉与姑息治疗

The Anaesthesiologist and Palliative Care in a Newborn with the Adam "Sequence".

作者信息

Pantoja Alberto Vieira, Estevez Maria Emília Gonçalves, Pessoa Bruno Lima, Araújo Fernando de Paiva, Barcellos Bruno Mendonça, Floriani Ciro Augusto, de Resende Marco Antonio Cardoso

机构信息

Fluminense Federal University (UFF), Niteroi, RJ, Brazil.

National Institute of Traumatology and Orthopaedics (INTO), Rio de Janeiro, RJ, Brazil.

出版信息

Case Rep Anesthesiol. 2017;2017:6230923. doi: 10.1155/2017/6230923. Epub 2017 Feb 23.

Abstract

Reports focusing on biomedical principlism and the role of anaesthesiologists in palliative care are rare. We present the case of a newborn with multiple craniofacial anomalies and a diagnosis of ADAM "sequence," in which surgical removal of placental adhesions to the dura mater and the correction of meningocele was not indicated due to the very short life expectancy. After 48 hours, the odor from the placenta indicted a necrotic process, which prevented the parents from being close to the child and increased his isolation. Urgent surgery was performed, after which the newborn was transported to the ICU and intubated under controlled mechanical ventilation. The patient died a week later. The principles of beneficence, nonmaleficence, justice, and respect for autonomy are simultaneously an inspiratory and regulatory framework for clinical practice. Although only necessary procedures are defended, which suggests a position contrary to invasive interventions at the end of life, sometimes they are the best palliative measures that can be taken in cases like the one described here.

摘要

关注生物医学原则主义以及麻醉医生在姑息治疗中作用的报告很少见。我们呈现了一名患有多种颅面畸形且诊断为ADAM“序列征”的新生儿病例,由于预期寿命极短,未建议手术切除胎盘与硬脑膜的粘连以及修复脑膜膨出。48小时后,胎盘散发的气味表明出现了坏死过程,这使得父母无法靠近孩子,增加了孩子的孤立感。于是进行了紧急手术,术后新生儿被送往重症监护病房并在控制机械通气下插管。患者一周后死亡。行善、不伤害、公正和尊重自主原则同时是临床实践的激励和规范框架。虽然只主张进行必要的程序,这表明与临终时的侵入性干预立场相反,但有时在像此处所描述的病例中,这些程序是可以采取的最佳姑息措施。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/8d3c/5343242/dd37cfca7696/CRIA2017-6230923.001.jpg

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