Fuoco Rebecca E
Health Research Communication Strategies, Los Angeles, CA.
Sleep. 2017 Apr 1;40(4). doi: 10.1093/sleep/zsx039.
The growing embrace of patient-centered outcomes research (PCOR) in sleep medicine is a significant step forward for the field. In engaging and incorporating the unique perspectives of people with sleep disorders, PCOR enhances the relevance of findings and facilitates the uptake of research into practice. While centering research design around what matters most to people with sleep disorders is critical, research communication must be similarly people-centered. One approach is using "people-centered language" in both professional and public communications. People-centered language is rooted in sociolinguistic research demonstrating that language both reflects and shapes attitudes. People-centered language puts people first, is precise and neutral, and respects autonomy. By adhering to the language guidelines described in this article, sleep researchers will better serve the field's most important stakeholders.
以患者为中心的结果研究（PCOR）在睡眠医学领域日益受到认可，这是该领域向前迈出的重要一步。通过关注并纳入睡眠障碍患者的独特观点，PCOR增强了研究结果的相关性，并促进了研究成果在实践中的应用。虽然围绕对睡眠障碍患者最重要的因素来设计研究至关重要，但研究成果的传播同样必须以患者为中心。一种方法是在专业交流和公众交流中都使用“以患者为中心的语言”。以患者为中心的语言源于社会语言学研究，该研究表明语言既反映态度又塑造态度。以患者为中心的语言将人置于首位，精确且中立，并尊重自主性。通过遵循本文所述的语言准则，睡眠研究人员将能更好地服务于该领域最重要的利益相关者。
