Hostalery Laura, Tosello Barthélémy
a Department of Neonatology , Hospital Nord, Assistance Publique Hôpitaux de Marseille, Aix-Marseille University , Marseille , France.
b UMR 7268 ADÉS, Aix-Marseille Université/EFS/CNRS, Espace Éthique Méditerranéen, Hôpital Adultes La Timone , Marseille , France.
Fetal Pediatr Pathol. 2017 Jun;36(3):203-212. doi: 10.1080/15513815.2017.1296519. Epub 2017 Mar 23.
To describe a population choosing to continue their pregnancy despite a severe fetal abnormality and to evaluate the role of antenatal neonatology consultation in perinatal decision-making.
A 10-year (2005-2015) retrospective descriptive study in a single Multidisciplinary Prenatal Diagnosis Center in South France. A series of pregnancies with severe fetal abnormalities were collected by a person outside the decision making process and/or the child's care.
Thirty-nine pregnancies were included, among which 12 couples chose the perinatal palliative care. In total, there were 25 live births (10 later died, with median of survival of 52.5 h [16-943.5]); only five infants received a palliative care plan at birth.
The choice to continue a pregnancy diagnosed with severe fetal pathology is on the rise in France. Treatment options point to standardize perinatal palliative care provided by trained perinatal professionals using standardized practices.
描述尽管胎儿存在严重异常仍选择继续妊娠的人群,并评估产前新生儿科会诊在围产期决策中的作用。
在法国南部的一个单一多学科产前诊断中心进行了一项为期10年(2005 - 2015年)的回顾性描述性研究。一系列患有严重胎儿异常的妊娠由决策过程之外的人员和/或儿童护理人员收集。
纳入了39例妊娠,其中12对夫妇选择了围产期姑息治疗。总共25例活产(10例后来死亡,生存中位数为52.5小时[16 - 943.5]);只有5名婴儿在出生时接受了姑息治疗计划。
在法国,继续妊娠并诊断出严重胎儿病理的选择正在增加。治疗选择指向由经过培训的围产期专业人员使用标准化实践来规范围产期姑息治疗。