University of Ottawa, Canada.
Dementia (London). 2019 Feb;18(2):630-643. doi: 10.1177/1471301217699677. Epub 2017 Mar 28.
This paper explores the purpose of walks for co-residing carers of people with dementia, using a social citizenship lens. The findings are based on the first phase of a study examining the everyday experiences of place, space, and neighbourhood of dementia carers. Using three forms of data collection - social network mapping, walking interviews, and participant-driven photography - the study brings forth information about why carers go on walks either alone or with the person with dementia. Carers explained that walks facilitate their connections with themselves, the person with dementia, their social environment, and their natural and built environment. In sum, walks provide a way of practicing and sustaining social citizenship. Carers' discourse about walks highlights their personal, everyday practices and strategies, as well as the larger tensions and contradictions of dementia care. The findings reinforce the need to bring into dialogue, from a carer perspective, a social citizenship model of dementia with the growing interest in dementia-friendly communities.
本文从社会公民视角探讨了与痴呆症患者共同居住的照料者散步的目的。研究结果基于第一阶段,该阶段研究考察了痴呆症照料者日常的地方、空间和邻里体验。该研究使用三种数据收集方式——社会网络绘图、散步访谈和参与者驱动摄影,提供了关于为什么照料者独自或与痴呆症患者一起散步的信息。照料者解释说,散步有助于他们与自己、与痴呆症患者、他们的社会环境以及他们的自然和建筑环境建立联系。总的来说,散步为实践和维持社会公民身份提供了一种途径。照料者关于散步的论述突出了他们的个人、日常实践和策略,以及痴呆症护理中更大的紧张和矛盾。研究结果强调了从照料者视角出发,将社会公民模式与对痴呆症友好社区的日益关注相结合的必要性。