Noonan Vanessa K, Chan Elaine, Santos Argelio, Soril Lesley, Lewis Rachel, Singh Anoushka, Cheng Christiana L, O'Connell Colleen, Truchon Catherine, Paquet Jérôme, Christie Sean, Ethans Karen, Tsai Eve, Ford Michael H, Drew Brian, Linassi A Gary, Bailey Christopher S, Fehlings Michael G
Rick Hansen Institute, Vancouver, British Columbia, Canada.
Centre for Operations Excellence, Sauder School of Business, University of British Columbia, Vancouver, British Columbia, Canada.
J Neurotrauma. 2017 Oct 15;34(20):2848-2855. doi: 10.1089/neu.2016.4928. Epub 2017 May 18.
Specialized centers of care for persons sustaining a traumatic spinal cord injury (tSCI) have been established in many countries, but the ideal system of care has not been defined. The objective of this study was to describe care delivery, with a focus on structures and services, for persons with tSCI in Canada. A survey was sent to 26 facilities (12 acute, 11 rehabilitation, and three integrated) from eight provinces participating in the Access to Care and Timing project. The survey included questions about: 1) care provision; 2) structural attributes and; 3) service availability. Survey completion rate was 100%. Data sources used to complete the survey were the Rick Hansen Spinal Cord Injury Registry, other hospital databases, clinical protocols, and subject matter experts. Acute and rehabilitation care provided by integrated facilities were described separately, resulting in data from 15 acute and 14 rehabilitation facilities. The number of admissions for tSCI over a 12-month period between 2009-2011 ranged from 17 to 104 (median 39), and 11 to 96 (median 32), for acute and rehabilitation facilities, respectively. Grouping of patients was reported by 8/15 acute and 10/14 rehabilitation facilities. Criteria for admission to the inpatient rehabilitation facilities varied among facilities (25 different criteria reported). Results from the survey revealed similarities in the basic structure and the provision of general services, but also some differences in the degree of specialization of care for persons with tSCI. Continued work on the impact of specialized care for both the patient and healthcare system is needed.
许多国家都已设立了针对创伤性脊髓损伤(tSCI)患者的专科护理中心,但理想的护理体系尚未明确。本研究的目的是描述加拿大tSCI患者的护理服务情况,重点关注其结构和服务。我们向参与“获得护理与时机”项目的八个省份的26家机构(12家急症机构、11家康复机构和3家综合机构)发送了调查问卷。该问卷包括以下方面的问题:1)护理提供情况;2)结构属性;3)服务可用性。调查问卷的完成率为100%。用于完成调查的数据来源包括里克·汉森脊髓损伤登记处、其他医院数据库、临床方案以及主题专家。综合机构提供的急症护理和康复护理分别进行了描述,最终得到了来自15家急症机构和14家康复机构的数据。2009年至2011年期间,急症机构和康复机构12个月内tSCI的入院人数分别为17至104人(中位数为39人)和11至96人(中位数为32人)。15家急症机构中的8家以及14家康复机构中的10家报告了患者分组情况。各机构住院康复设施的入院标准各不相同(共报告了25种不同标准)。调查结果显示,在基本结构和一般服务提供方面存在相似之处,但tSCI患者的专科护理程度也存在一些差异。仍需继续研究专科护理对患者和医疗系统的影响。