Imm Kellie R, Williams Faustine, Housten Ashley J, Colditz Graham A, Drake Bettina F, Gilbert Keon L, Yang Lin
a Division of Public Health Sciences, Department of Surgery , Washington University School of Medicine , Saint Louis , MO , USA.
b Department of Health Services Management and Policy , East Tennessee State University , Johnson City , TN , USA.
J Psychosoc Oncol. 2017 Jul-Aug;35(4):409-423. doi: 10.1080/07347332.2017.1294641. Epub 2017 Apr 11.
The aim of this study was to explore the African American prostate cancer survivorship experience following radical prostatectomy and factors contributing to quality of life during survival.
African American men who were part of a larger prostate cancer cohort were invited to participate in a focus group. Eighteen open-ended questions were designed by the study team and an experienced moderator to elicit participants' survivorship experiences.
Twelve men consented to participate in the study. Emergent themes included views of prostate cancer in the African American community, perceptions of normalcy, emotional side effects following radical prostatectomy, and social support involvement and impact during recovery.
Previous findings suggest that African American men may experience more distress than Caucasian men when facing typical prostate cancer side effects. Traditional masculine role norms and negative perceptions of "disease disclosure" in the African American community could be contributing to the distress reported by some in this study. Strengthening social support systems by promoting more prosocial coping and help-seeking behaviors early in the survivorship journey may help bypass the detrimental health effects associated with masculine role identification, resulting in improved quality of life throughout the lengthy survival period anticipated for these men.
本研究旨在探讨非裔美国男性在根治性前列腺切除术后的前列腺癌生存经历以及影响生存期间生活质量的因素。
邀请了一个更大的前列腺癌队列中的非裔美国男性参加焦点小组。研究团队和一位经验丰富的主持人设计了18个开放式问题，以引出参与者的生存经历。
12名男性同意参与该研究。出现的主题包括非裔美国社区对前列腺癌的看法、对正常状态的认知、根治性前列腺切除术后的情绪副作用以及康复期间社会支持的参与和影响。
此前的研究结果表明，在面对典型的前列腺癌副作用时，非裔美国男性可能比白人男性经历更多的痛苦。非裔美国社区中传统的男性角色规范以及对“疾病披露”的负面认知可能是本研究中一些人所报告的痛苦的原因。在生存之旅早期通过促进更多亲社会应对和求助行为来加强社会支持系统，可能有助于避免与男性角色认同相关的有害健康影响，从而在这些男性预期的漫长生存期内提高生活质量。
