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支持临终关怀的组织层面原则与实践:一项定性研究

Organization-level principles and practices to support spiritual care at the end of life: a qualitative study.

作者信息

Holyoke Paul, Stephenson Barry

机构信息

Saint Elizabeth Research Centre, Saint Elizabeth Health Care, 90 Allstate Parkway, Suite 300, Markham, ON, Canada, L3R 6H3.

Department of Religious Studies, Memorial University of Newfoundland, St. John's, NF, Canada, A1A 5S7.

出版信息

BMC Palliat Care. 2017 Apr 11;16(1):24. doi: 10.1186/s12904-017-0197-9.

Abstract

BACKGROUND

Though most models of palliative care specifically include spiritual care as an essential element, secular health care organizations struggle with supporting spiritual care for people who are dying and their families. Organizations often leave responsibility for such care with individual care providers, some of whom are comfortable with this role and well supported, others who are not. This study looked to hospice programs founded and operated on specific spiritual foundations to identify, if possible, organizational-level practices that support high-quality spiritual care that then might be applied in secular healthcare organizations.

METHODS

Forty-six digitally-recorded interviews were conducted with bereaved family members, care providers and administrators associated with four hospice organizations in North America, representing Buddhist, Catholic, Jewish, and Salvation Army faith traditions. The interviews were analyzed iteratively using the constant comparison method within a grounded theory approach.

RESULTS

Nine Principles for organizational support for spiritual care emerged from the interviews. Three Principles identify where and how spiritual care fits with the other aspects of palliative care; three Principles guide the organizational approach to spiritual care, including considerations of assessment and of sacred places; and three Principles support the spiritual practice of care providers within the organizations. Organizational practices that illustrate each of the principles were provided by interviewees.

CONCLUSIONS

These Principles, and the practices underlying them, could increase the quality of spiritual care offered by secular health care organizations at the end of life.

摘要

背景

尽管大多数姑息治疗模式都特别将精神关怀作为一个基本要素,但世俗的医疗保健机构在为临终患者及其家人提供精神关怀方面面临困难。机构往往将这种关怀的责任留给个体护理提供者,其中一些人对这一角色感到自在且得到了充分支持,而另一些人则不然。本研究着眼于基于特定精神基础建立和运营的临终关怀项目,以确定(如果可能的话)那些支持高质量精神关怀的组织层面的做法,这些做法随后可应用于世俗医疗保健机构。

方法

对与北美四个临终关怀组织相关的丧亲家庭成员、护理提供者和管理人员进行了46次数字录音访谈,这些组织分别代表佛教、天主教、犹太教和救世军的信仰传统。访谈采用扎根理论方法,运用持续比较法进行反复分析。

结果

访谈得出了组织支持精神关怀的九条原则。三条原则确定了精神关怀在姑息治疗其他方面的位置和方式;三条原则指导组织开展精神关怀的方法,包括评估和圣地的考量;还有三条原则支持组织内护理提供者的精神实践。受访者提供了说明每条原则的组织实践。

结论

这些原则及其背后的实践,可以提高世俗医疗保健机构在生命末期提供的精神关怀质量。

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