Goldsmith Joy, Ragan Sandra L
Department of Communication, University of Memphis, 235 Art and Communication Building, Memphis, TN 38152-3150, USA.
Department of Communication, University of Oklahoma, Norman, OK 73019, USA.
Behav Sci (Basel). 2017 Apr 13;7(2):19. doi: 10.3390/bs7020019.
In this conceptual piece, we survey the progress of palliative care communication and reflect back on a chapter we wrote a decade ago, which featured the communication concept of mutual pretense, first described by Glaser and Strauss (1965). This work will include an update on family caregivers and their role in cancer caregiving as well as a review of current palliative care communication curriculum available for providers. And finally, we will spotlight the conversation and research going forward on the subject of health literacy for all stakeholders; patients, families, providers, and systems. We feature one family's story of incurable cancer and end of life to revisit the needs we identified ten years ago, which are still present. Goals for going forward in chronic and terminal illness are suggested in a health care context still too void of palliative care communication resources for providers, patients, and especially family caregivers.
在这篇概念性文章中，我们审视了姑息治疗沟通的进展，并回顾了我们十年前撰写的一章内容，其中介绍了由格拉泽和施特劳斯（1965年）首次描述的相互假装的沟通概念。这项工作将包括对家庭护理人员及其在癌症护理中的作用的更新，以及对目前可供医疗服务提供者使用的姑息治疗沟通课程的回顾。最后，我们将聚焦于所有利益相关者（患者、家庭、医疗服务提供者和医疗系统）在健康素养主题上正在进行的对话和研究。我们讲述了一个家庭患不治之症和生命终结的故事，以重温我们十年前确定的需求，这些需求仍然存在。在医疗环境中，对于医疗服务提供者、患者，尤其是家庭护理人员而言，姑息治疗沟通资源仍然匮乏，本文提出了在慢性和晚期疾病中向前发展的目标。
