Guekht Alla, Gersamiya Anna, Kaimovskiy Igor, Mizinova Maria, Yakovlev Alexander, Shpak Alexander
Moscow Research and Clinical Center for Neuropsychiatry of the Healthcare Department of Moscow, 43, Donskaya ul., Moscow 115419, Russian Federation; Department of Neurology, Neurosurgery and Medical Genetics, Pirogov Russian National Research Medical University, 8, Leninsky prospect, bl.8, Moscow 119049, Russian Federation.
Moscow Research and Clinical Center for Neuropsychiatry of the Healthcare Department of Moscow, 43, Donskaya ul., Moscow 115419, Russian Federation.
Epilepsy Behav. 2017 May;70(Pt A):182-186. doi: 10.1016/j.yebeh.2017.03.020. Epub 2017 Apr 18.
To assess the knowledge and attitudes in Moscow towards people with epilepsy (PWE).
Data were collected from 1167 adults, permanent residents of Moscow, who were interviewed. A 10-item questionnaire was used addressing three major domains: familiarity with epilepsy (2 questions), understanding of epilepsy (5 questions), and attitude towards the PWE (3 questions). Results were standardized to the Moscow population.
The study population was generally well informed about epilepsy. About 80% "has heard" of epilepsy; however, personal acquaintance with PWE was reported by less than half of the study participants. The level of understanding of the disease and its etiology was quite low. About 60% of the survey participants believed that epilepsy was a type of mental retardation. One-third (34%) of respondents were afraid to stay in the proximity of PWE. Only 38% of the survey participants considered epilepsy to be curable; men significantly less frequently than women. Overall, the level of understanding of epilepsy was proportional to the level of education of respondents. Negative attitudes towards PWE were demonstrated in a significant part of the population. Almost half of the respondents would object to their child playing or studying with a child who has epilepsy and more than half (57%) were against the marriage of their daughter or son to a person with epilepsy. Two-fifths of the respondents ranked epilepsy as the "least preferred" of the six chronic diseases for a colleague.
This is the first study on awareness and attitudes to PWE in the adult population of Moscow. The study demonstrated that the general public is familiar with epilepsy, but has a rather low level of understanding of essential aspects of the disease. There is an overall high level of negative attitudes towards PWE in Russia, creating a need for targeted interventions. These results reinforced the importance of public education in reducing the stigma of epilepsy.
评估莫斯科民众对癫痫患者的认知和态度。
收集了1167名莫斯科成年常住人口的访谈数据。使用了一份包含10个条目的问卷，涉及三个主要领域：对癫痫的熟悉程度（2个问题）、对癫痫的理解（5个问题）以及对癫痫患者的态度（3个问题）。结果根据莫斯科人口进行了标准化处理。
研究人群总体上对癫痫有一定了解。约80%的人“听说过”癫痫；然而，不到一半的研究参与者表示与癫痫患者有过个人接触。对该疾病及其病因的理解水平相当低。约60%的调查参与者认为癫痫是一种智力障碍。三分之一（34%）的受访者害怕与癫痫患者近距离接触。只有38%的调查参与者认为癫痫可治愈；男性的比例明显低于女性。总体而言，对癫痫的理解水平与受访者的教育程度成正比。很大一部分人群对癫痫患者表现出负面态度。几乎一半的受访者会反对自己的孩子与患有癫痫的孩子一起玩耍或学习，超过一半（57%）的人反对自己的女儿或儿子与癫痫患者结婚。五分之二的受访者将癫痫列为六种慢性病中最不希望同事患有的疾病。
这是关于莫斯科成年人群对癫痫患者的认知和态度的第一项研究。该研究表明，公众对癫痫有所了解，但对该疾病基本方面的理解水平相当低。在俄罗斯，总体上对癫痫患者的负面态度较高，因此需要有针对性的干预措施。这些结果强化了公众教育在减少癫痫污名化方面的重要性。
