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Risk Manag Healthc Policy. 2017 Apr 7;10:33-40. doi: 10.2147/RMHP.S130431. eCollection 2017.
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Legal and Ethical Considerations for the Design and Use of Web Portals for Researchers, Clinicians, and Patients: Scoping Literature Review.法律和伦理考虑因素,用于研究人员、临床医生和患者的 Web 门户的设计和使用:范围文献综述。
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Development and Validation of a Useful Taxonomy of Patient Portals Based on Characteristics of Patient Engagement.基于患者参与特征的患者门户有用分类法的开发和验证。
Methods Inf Med. 2021 Jun;60(S 01):e44-e55. doi: 10.1055/s-0041-1730284. Epub 2021 Jul 9.

本文引用的文献

1
The Effectiveness of Web-Based Asthma Self-Management System, My Asthma Portal (MAP): A Pilot Randomized Controlled Trial.基于网络的哮喘自我管理系统“我的哮喘门户”(MAP)的有效性:一项试点随机对照试验。
J Med Internet Res. 2016 Dec 1;18(12):e313. doi: 10.2196/jmir.5866.
2
Implications of Direct Patient Online Access to Radiology Reports Through Patient Web Portals.患者通过患者网络门户直接在线获取放射学报告的影响。
J Am Coll Radiol. 2016 Dec;13(12 Pt B):1608-1614. doi: 10.1016/j.jacr.2016.09.007.
3
Encouraging Patient Portal Use in the Patient-Centered Medical Home: Three Stakeholder Perspectives.鼓励患者在以患者为中心的医疗之家使用患者门户网站:三个利益相关者的视角
J Med Internet Res. 2016 Nov 22;18(11):e308. doi: 10.2196/jmir.6488.
4
A Web-Based Patient Portal for Mental Health Care: Benefits Evaluation.用于精神卫生保健的基于网络的患者门户:效益评估。
J Med Internet Res. 2016 Nov 16;18(11):e294. doi: 10.2196/jmir.6483.
5
Strategic and integrated planning for healthy, connected cities: Chattanooga case study.健康互联城市的战略与综合规划:查塔努加案例研究
Prev Med. 2017 Feb;95 Suppl:S115-S119. doi: 10.1016/j.ypmed.2016.11.002. Epub 2016 Nov 12.
6
e-Vita: design of an innovative approach to COPD disease management in primary care through eHealth application.电子维塔:通过电子健康应用程序在初级保健中对慢性阻塞性肺疾病进行疾病管理的创新方法设计。
BMC Pulm Med. 2016 Aug 17;16(1):122. doi: 10.1186/s12890-016-0283-4.
7
Impact of a Web-Portal Intervention on Community ADHD Care and Outcomes.网络门户干预对社区注意力缺陷多动障碍护理及结果的影响。
Pediatrics. 2016 Aug;138(2). doi: 10.1542/peds.2015-4240.
8
What the Patient Wants: An Analysis of Radiology-Related Inquiries From a Web-Based Patient Portal.患者想要什么:对基于网络的患者门户中与放射学相关咨询的分析
J Am Coll Radiol. 2016 Nov;13(11):1311-1318. doi: 10.1016/j.jacr.2016.05.022. Epub 2016 Jul 19.
9
Patient Portal Use and Blood Pressure Control in Newly Diagnosed Hypertension.新诊断高血压患者的患者门户网站使用情况与血压控制
J Am Board Fam Med. 2016 Jul-Aug;29(4):452-9. doi: 10.3122/jabfm.2016.04.160008.
10
Sustained Use of Patient Portal Features and Improvements in Diabetes Physiological Measures.患者门户网站功能的持续使用与糖尿病生理指标的改善
J Med Internet Res. 2016 Jul 1;18(7):e179. doi: 10.2196/jmir.5663.

患者网络门户、疾病管理与一级预防。

Patient web portals, disease management, and primary prevention.

作者信息

Coughlin Steven S, Prochaska Judith J, Williams Lovoria B, Besenyi Gina M, Heboyan Vahé, Goggans D Stephen, Yoo Wonsuk, De Leo Gianluca

机构信息

Department of Clinical and Digital Health Sciences, College of Allied Health Sciences, Augusta University, Augusta, GA.

Department of Medicine, Stanford Prevention Research Center, Stanford University, Stanford, CA.

出版信息

Risk Manag Healthc Policy. 2017 Apr 7;10:33-40. doi: 10.2147/RMHP.S130431. eCollection 2017.

DOI:10.2147/RMHP.S130431
PMID:28435342
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5391175/
Abstract

BACKGROUND

Efforts aimed at health care reform and continued advances in information technologies have prompted interest among providers and researchers in patient web portals. Patient web portals are password-protected online websites that offer the patients 24-hour access to personal health information from anywhere with an Internet connection.

METHODS

This article, which is based upon bibliographic searches in PubMed, reviews important developments in web portals for primary and secondary disease prevention, including patient web portals tethered to electronic medical records, disease-specific portals, health disparities, and health-related community web portals.

RESULTS

Although findings have not been uniformly positive, several studies of the effectiveness of health care system patient portals in chronic disease management have shown promising results with regard to patient outcomes. Patient web portals have also shown promising results in increasing adherence with screening recommendations. Racial and ethnic minorities, younger persons, and patients who are less educated or have lower health literacy have been found to be less likely to use patient portals.

CONCLUSION

Additional studies are needed of the utility and effectiveness of different elements of web portals for different patient populations. This should include additional diseases and health topics such as smoking cessation and weight management.

摘要

背景

旨在医疗保健改革的努力以及信息技术的持续进步引发了医疗服务提供者和研究人员对患者网络门户的兴趣。患者网络门户是受密码保护的在线网站,患者可通过互联网连接从任何地方24小时访问个人健康信息。

方法

本文基于对PubMed的文献检索,回顾了用于一级和二级疾病预防的网络门户的重要发展,包括与电子病历相关联的患者网络门户、特定疾病门户、健康差异以及与健康相关的社区网络门户。

结果

尽管研究结果并非一致积极,但几项关于医疗保健系统患者门户在慢性病管理中的有效性的研究已显示出在患者预后方面有前景的结果。患者网络门户在提高对筛查建议的依从性方面也显示出有前景的结果。已发现少数族裔、年轻人以及受教育程度较低或健康素养较低的患者使用患者门户的可能性较小。

结论

需要针对不同患者群体对网络门户不同要素的效用和有效性进行更多研究。这应包括更多疾病和健康主题,如戒烟和体重管理。