Carreño-Mora Fidias, Ortiz-Corredor Fernando, Espinosa-García Eugenia, Pérez-Hernández Claudia E
Clínica Materno Infantil Casa del Niño, Montería, Colombia.
Centro de Investigación en Fisiatría y Electrodiagnóstico (CIFEL), Bogotá, Colombia,
Rev Salud Publica (Bogota). 2015 Jul;17(4):578-588. doi: 10.15446/rsap.v17n4.35593.
Objective To develop and validate a scale for assessing the difficulties of daily care of children with severe cerebral palsy (CP) at functional levels IV and V on the GMFCS (Gross Motor Function Classification System). Materials and Methods A validation study was performed by means of a questionnaire to 108 caregivers of children with CP. The first phase of the study aimed to develop the questionnaire and conduct a pilot experiment. The second phase covered the application of the scale. Finally, the third phase consisted of a psychometric analysis (construct and criterion-related validity, internal consistency) and the determination of the scale's utility. For the retest, the questionnaire was applied to 62 patients. Results A scale was developed with 10 items from two domains. The internal consistency was very good with a Cronbach's alpha of 0.87. For the criterion-related validity, a Pearson's correlation coefficient of 0.71 was obtained when the scale was compared to the GMFCS´s functional levels. For the reliability retest, a Pearson's correlation coefficient higher than 0.87 for each of the items was found. Conclusions The "Caregiver Scale" is a valid and reliable instrument. Its usefulness for measuring the difficulties in the care of children with severe CP is acceptable.
目的 开发并验证一个用于评估处于GMFCS（粗大运动功能分类系统）IV级和V级的重度脑瘫（CP）儿童日常护理困难程度的量表。材料与方法 通过对108名CP儿童的照料者进行问卷调查开展一项效度研究。研究的第一阶段旨在编制问卷并进行预试验。第二阶段涵盖该量表的应用。最后，第三阶段包括心理测量分析（结构效度和效标关联效度、内部一致性）以及确定该量表的效用。对于重测，对62名患者应用了问卷。结果 开发出一个包含来自两个领域的10个条目的量表。内部一致性非常好，Cronbach's α系数为0.87。对于效标关联效度，将该量表与GMFCS的功能水平进行比较时，获得的Pearson相关系数为0.71。对于重测信度，发现每个条目的Pearson相关系数均高于0.87。结论 “照料者量表”是一个有效且可靠的工具。其在测量重度CP儿童护理困难程度方面的效用是可接受的。
