University of Otago, Dunedin, Aotearoa/, New Zealand.
Victoria University, Wellington, Aotearoa/, New Zealand.
Arthritis Care Res (Hoboken). 2018 Feb;70(2):260-267. doi: 10.1002/acr.23272. Epub 2018 Jan 3.
Gout typically responds well to medications, but adherence might be improved by education that meets individuals' needs in a way that is inclusive of their ethnicity and rurality. The aim of this study was to compare education preferences of Māori and New Zealand European (NZEuropean) individuals with gout, and of those living in rural or urban areas.
People with gout managed in primary care were recruited from 2 rural regions and 1 city within Aotearoa/New Zealand. Focus groups were held with 26 Māori and 42 NZEuropean participants (44 rural, 24 urban). Participants discussed education preferences for diet, medication, and ways of communicating. The nominal group technique was employed, whereby the group compiled a list of ideas and then participants individually ranked the 3 most important ideas for each topic.
The most frequently prioritized ideas for the 3 topics were knowing one's own food triggers, knowing side effects of medications, and communicating via a general practitioner (GP) or specialist. More Māori participants prioritized natural remedies, easy to understand information, and communicating via television. More NZEuropean participants prioritized knowing the kinds of alcohol that trigger gout, communicating via GP/specialist, and receiving written information. More urban participants prioritized knowing to stay hydrated and medication doses as important information.
Māori and NZEuropean individuals with gout report different understandings and education preferences around personal triggers of gout, treatment options, and ways of receiving information about gout. Further research is required to develop ethnicity-specific gout education resources internationally.
痛风通常对药物治疗反应良好，但通过以包容个人种族和农村背景的方式满足其需求的教育，可以提高依从性。本研究的目的是比较毛利人和新西兰欧洲人（NZEuropean）痛风患者以及居住在农村或城市地区的患者的教育偏好。
从新西兰的 2 个农村地区和 1 个城市招募在初级保健中管理的痛风患者。与 26 名毛利人和 42 名 NZEuropean 参与者（44 名农村，24 名城市）进行了焦点小组讨论。参与者讨论了饮食、药物和沟通方式的教育偏好。采用名义群体技术，即小组编制想法清单，然后参与者个人对每个主题的 3 个最重要的想法进行排名。
在这 3 个主题中，最常被优先考虑的想法是了解自己的食物诱因、了解药物的副作用以及通过全科医生（GP）或专家进行沟通。更多的毛利参与者优先考虑天然疗法、易于理解的信息以及通过电视进行沟通。更多的 NZEuropean 参与者优先考虑了解触发痛风的酒精种类、通过 GP/专家进行沟通以及接收书面信息。更多的城市参与者优先考虑了解保持水分和药物剂量的重要信息。
患有痛风的毛利人和新西兰欧洲人在个人痛风诱因、治疗选择以及接受痛风信息的方式方面报告了不同的理解和教育偏好。需要进一步研究以在国际上开发针对特定种族的痛风教育资源。
