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多媒体患者教育工具的开发与初步测试:针对膝关节骨关节炎、骨质疏松症和类风湿关节炎患者。

Development and Pilot Testing of Multimedia Patient Education Tools for Patients With Knee Osteoarthritis, Osteoporosis, and Rheumatoid Arthritis.

机构信息

University of Texas MD Anderson Cancer Center, Houston.

University of Iowa College of Dentistry, Iowa City.

出版信息

Arthritis Care Res (Hoboken). 2018 Feb;70(2):213-220. doi: 10.1002/acr.23271. Epub 2017 Dec 29.

Abstract

OBJECTIVE

We developed and tested multimedia patient education tools (video tools) for patients with knee osteoarthritis (OA), osteoporosis (OP), and rheumatoid arthritis (RA).

METHODS

We followed an "edutainment" model, incorporating educational patient story lines. The goals were designed to make the programs both didactic and entertaining, with navigation and graphic user interfaces as simple as possible. We created both English and Spanish language versions. Once the video tool was finalized, 60 patients, 20 per disease, were shown the tool and interviewed. Disease knowledge was our primary outcome, and decision conflict, disease management, and acceptability were secondary outcomes.

RESULTS

We observed statistically significant differences in pre- to postintervention knowledge questionnaire scores (before and after viewing the video tool) (OA: P = 0.03, OP: P = 0.01, and RA: P < 0.0001). Most participants felt they gained "clarity" on disease duration, symptoms, and the time medication takes to start acting; were "encouraged to see their doctor regularly"; and were more aware about taking their medications. In terms of acceptability, most patients in all disease groups found the length and amount of information presented in the video tools to be "just right," and the presentation to be "balanced." In terms of comprehension, all participants provided a favorable evaluation of the video tool; all found the video easy to use, the vocabulary easy to understand, and the materials to be well organized.

CONCLUSION

Multimedia tools that incorporate videos may help patients better understand and manage their disease. Patient involvement in the development process is essential to ensure relevant content and usability.

摘要

目的

我们为膝骨关节炎(OA)、骨质疏松症(OP)和类风湿关节炎(RA)患者开发并测试了多媒体患者教育工具(视频工具)。

方法

我们遵循“寓教于乐”的模式,结合教育患者故事情节。目标旨在使节目既具有教育性又具有娱乐性,导航和图形用户界面尽可能简单。我们创建了英语和西班牙语版本。一旦视频工具定稿,我们将向 60 名患者(每种疾病 20 名)展示该工具并进行采访。疾病知识是我们的主要结果,决策冲突、疾病管理和可接受性是次要结果。

结果

我们观察到知识问卷评分(观看视频工具前后)存在统计学显著差异(OA:P = 0.03,OP:P = 0.01,RA:P < 0.0001)。大多数参与者表示,他们对疾病持续时间、症状以及药物开始起效所需的时间有了“更清晰的认识”;“鼓励定期看医生”;并更加意识到服用药物的重要性。在可接受性方面,大多数患有所有疾病的患者都认为视频工具中呈现的长度和信息量“恰到好处”,呈现方式“平衡”。在理解方面,所有参与者都对视频工具给予了好评;所有人都发现视频易于使用,词汇易于理解,材料组织良好。

结论

包含视频的多媒体工具可以帮助患者更好地了解和管理他们的疾病。患者参与开发过程对于确保相关内容和可用性至关重要。

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