Coffey Nathan T, Cassese James, Cai Xinsheng, Garfinkel Steven, Patel Drasti, Jones Rebecca, Shaewitz Dahlia, Weinstein Ali A
Center for the Study of Chronic Illness and Disability, George Mason University, Fairfax, VA, United States.
American Institutes for Research, Washington, DC, United States.
J Med Internet Res. 2017 May 10;19(5):e159. doi: 10.2196/jmir.7027.
In order to meet the challenges of caring for an injured person, caregivers need access to health information. However, caregivers often feel that they lack adequate information. Previous studies of caregivers have primarily focused on either their time and emotional burdens or their health outcomes, but the information needs of caregivers have not been thoroughly investigated.
The purpose of this investigation was to identify the preferred sources of health information for caregivers supporting individuals with injuries and to explore how access to this information could be improved.
A total of 32 caregivers participated in semistructured interviews, which were used in order to develop a more in-depth understanding of these caregivers' information needs. Digital audio recordings of the interviews were used for analysis purposes. These audio recordings were analyzed using a thematic analysis or qualitative content analysis. All of participant's interviews were then coded using the qualitative analysis program, Nvivo 10 for Mac (QSR International).
The caregivers endorsed similar behaviors and preferences when seeking and accessing health information. Medical professionals were the preferred source of information, while ease of access made the Internet the most common avenue to obtain information. The challenges faced by participants were frequently a result of limited support. In describing an ideal health system, participants expressed interest in a comprehensive care website offering support network resources, instructive services about the injury and caregiving, and injury-specific materials.
According to the participants, an ideal health information system would include a comprehensive care website that offered supportive network resources, instructive services about the injury and caregiving, and materials specific to the type of patient injury.
为应对护理伤者的挑战，护理人员需要获取健康信息。然而，护理人员常常觉得自己缺乏足够的信息。以往对护理人员的研究主要集中在他们的时间和情感负担或健康结果上，但护理人员的信息需求尚未得到充分调查。
本调查的目的是确定支持伤者的护理人员首选的健康信息来源，并探讨如何改善获取这些信息的途径。
共有32名护理人员参与了半结构化访谈，以便更深入地了解这些护理人员的信息需求。访谈的数字录音用于分析目的。这些录音采用主题分析或定性内容分析进行分析。然后使用定性分析程序Nvivo 10 for Mac（QSR International）对所有参与者的访谈进行编码。
护理人员在寻求和获取健康信息时表现出相似的行为和偏好。医学专业人员是首选的信息来源，而获取信息的便捷性使互联网成为最常见的信息获取途径。参与者面临的挑战往往是支持有限的结果。在描述理想的医疗系统时，参与者对一个提供支持网络资源、有关损伤和护理的指导服务以及特定损伤材料的综合护理网站表示感兴趣。
根据参与者的说法，理想的健康信息系统应包括一个综合护理网站，该网站提供支持网络资源、有关损伤和护理的指导服务以及针对患者损伤类型的材料。
