School of Health Services Management,Ryerson University,Ontario Pharmacists Association.
Centre for Urban Health Solutions,Department of Medicine,University of Toronto,Institute of Health Policy, Management, and Evaluation,Division of General Internal
Int J Technol Assess Health Care. 2017 Jan;33(2):270-278. doi: 10.1017/S0266462317000307. Epub 2017 May 18.
We developed specific evaluation criteria to assess patient and public involvement in resource allocation decisions in health care.
We reviewed the literature from health and other sectors relevant to stakeholder involvement and conducted twenty-seven key informant interviews with stakeholders knowledgeable about patient and public involvement in Canadian drug resource allocation decisions. We used an inductive qualitative thematic approach to analyze the interviews with codes and categories developed directly from individuals' interview transcripts.
Integrating respondents' comments and the literature review, we identified nine evaluation criteria of patient and the public involvement in healthcare resource allocation decision making: clarity regarding rationale and roles of patient and public members, sufficient support, adequate representation of relevant views, fair decision-making processes, legitimacy of committee processes, adequate opportunity for participation, meaningful degree of participation, noticeable effect on decisions, and considerations of the efficiency of patient and public involvement.
Our results will help to develop methods to evaluate patient and public involvement in healthcare decision making.
我们制定了特定的评估标准，以评估患者和公众在医疗保健资源分配决策中的参与度。
我们回顾了与利益相关者参与相关的健康和其他领域的文献，并对 27 名了解加拿大药物资源分配决策中患者和公众参与情况的利益相关者进行了关键知情人访谈。我们使用归纳定性主题方法，直接从个人访谈记录中对访谈进行编码和分类。
综合受访者的意见和文献综述，我们确定了患者和公众参与医疗保健资源分配决策的九个评估标准：明确患者和公众成员的理由和角色、充分的支持、充分代表相关观点、公平的决策过程、委员会程序的合法性、充分的参与机会、有意义的参与程度、对决策的明显影响，以及对患者和公众参与的效率的考虑。
我们的研究结果将有助于制定评估患者和公众参与医疗保健决策的方法。
