Perestelo-Perez Lilisbeth, Rivero-Santana Amado, Alvarez-Perez Yolanda, Alonso-Coello Pablo, Orrego Carola, Serrano-Aguilar Pedro
Evaluation Unit of the Canary Islands Health Service (SESCS), Tenerife, Spain; Health Services Research on Chronic Patients Network (REDISSEC), Tenerife, Spain; Center for Biomedical Research of the Canary Islands (CIBICAN), Tenerife, Spain.
Health Services Research on Chronic Patients Network (REDISSEC), Tenerife, Spain; Center for Biomedical Research of the Canary Islands (CIBICAN), Tenerife, Spain; Canarian Foundation for Health Research (FUNCANIS), Tenerife, Spain.
Z Evid Fortbild Qual Gesundhwes. 2017 Jun;123-124:85-90. doi: 10.1016/j.zefq.2017.05.002. Epub 2017 May 19.
Patients' rights to autonomy, information and participation in their own health care are recognized in the Spanish legal system from the early 2000's. Public institutions have progressively launched several initiatives to promote and improve patients' empowerment and self-care. However, the concept of shared decision making (SDM), although embedded in the more general concept of "active/empowered patient", usually has not been specifically advocated as an essential requisite for improving the quality of health services, either in the legal normative or the existing educational proposals. Research on SDM and the development of Patient Decision Aids (PtDAs) has increasingly grown and currently there are several of these materials available for patients with different diseases. Along with this research activity, the growing interest of patients and professionals in patient participation and SDM makes us optimistic about a gradual development of this care model in the medium term. However, there are several limitations and challenges that must be overcome in the near future. The implementation of PtDAs in clinical practice is imperative and issues such as their inclusion in clinical guidelines and electronic medical records should be encouraged. Concurrently, it is necessary to train professionals in SDM skills and the use of encounter PtDAs.
在21世纪初,西班牙法律体系就认可了患者在自身医疗保健方面的自主权、知情权和参与权。公共机构已逐步发起多项举措,以促进和提高患者的赋权及自我护理能力。然而,尽管共同决策(SDM)这一概念已融入“积极/赋权患者”这一更为宽泛的概念之中,但无论是在法律规范还是现有的教育提案中,它通常都未被特别倡导为提高医疗服务质量的一项基本要求。关于共同决策的研究以及患者决策辅助工具(PtDAs)的开发日益增多,目前有多种此类材料可供患有不同疾病的患者使用。随着这项研究活动的开展,患者和专业人员对患者参与及共同决策的兴趣与日俱增,这让我们对这种护理模式在中期的逐步发展感到乐观。然而,在不久的将来,仍有一些限制因素和挑战必须加以克服。在临床实践中实施患者决策辅助工具势在必行,应鼓励将其纳入临床指南和电子病历等问题。与此同时,有必要对专业人员进行共同决策技能及使用患者决策辅助工具方面的培训。