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本文引用的文献

1
Mental Health Among Parents of Children With Critical Congenital Heart Defects: A Systematic Review.患有严重先天性心脏病儿童的父母的心理健康:一项系统综述。
J Am Heart Assoc. 2017 Feb 1;6(2):e004862. doi: 10.1161/JAHA.116.004862.
2
Psychosocial needs of children undergoing an invasive procedure for a CHD and their parents.患有先天性心脏病(CHD)且正在接受侵入性手术的儿童及其父母的心理社会需求。
Cardiol Young. 2017 Mar;27(2):243-254. doi: 10.1017/S1047951116000391. Epub 2016 Apr 8.
3
Well-Being and Agency in Parents of Children With Congenital Heart Disease: A Survey in Chile.先天性心脏病患儿父母的幸福感与能动性:智利的一项调查
World J Pediatr Congenit Heart Surg. 2016 Mar;7(2):139-45. doi: 10.1177/2150135115623284.
4
Evaluation of depression and anxiety in parents of children undergoing cardiac catheterization.对接受心导管插入术患儿父母的抑郁和焦虑状况评估。
Turk Kardiyol Dern Ars. 2015 Sep;43(6):536-41. doi: 10.5543/tkda.2015.28928.
5
Familial impact and coping with child heart disease: a systematic review.家族影响与应对儿童心脏病:一项系统综述
Pediatr Cardiol. 2015 Apr;36(4):695-712. doi: 10.1007/s00246-015-1121-9. Epub 2015 Jan 25.
6
Exploring causal pathways of child behavior and maternal mental health in families with a child with congenital heart disease: a longitudinal study.探索先天性心脏病患儿家庭中儿童行为与母亲心理健康的因果路径:一项纵向研究。
Psychol Med. 2014 Dec;44(16):3421-33. doi: 10.1017/S0033291713002894. Epub 2013 Nov 29.
7
Psychosocial experiences of parents of infants with hypoplastic left heart syndrome in the PICU.在 PICU 中患有左心发育不全综合征婴儿的父母的心理社会体验。
Pediatr Crit Care Med. 2013 Nov;14(9):869-75. doi: 10.1097/PCC.0b013e31829b1a88.
8
Psychosocial risk in families of infants undergoing surgery for a serious congenital heart disease.患有严重先天性心脏病的婴儿接受手术的家庭中的心理社会风险。
Cardiol Young. 2014 Aug;24(4):632-9. doi: 10.1017/S1047951113000760. Epub 2013 Jun 27.
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Temporal trends in survival among infants with critical congenital heart defects.危重新生儿先天性心脏病患者的生存时间趋势。
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Trauma reactions in mothers and fathers after their infant's cardiac surgery.婴儿心脏手术后父母的创伤反应。
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先天性心脏病患儿父母的心理健康问题

Mental Health Problems in Parents of Children with Congenital Heart Disease.

作者信息

Kolaitis Gerasimos A, Meentken Maya G, Utens Elisabeth M W J

机构信息

Department of Child Psychiatry, Medical School, "Aghia Sophia" Children's Hospital, National and Kapodistrian University of Athens, Athens, Greece.

Department of Child and Adolescent Psychiatry/Psychology, Erasmus MC - Sophia Children's Hospital, Rotterdam, Netherlands.

出版信息

Front Pediatr. 2017 May 8;5:102. doi: 10.3389/fped.2017.00102. eCollection 2017.

DOI:10.3389/fped.2017.00102
PMID:28534022
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5421144/
Abstract

This review will provide a concise description of mental health problems in parents of children with a (non-syndromic) congenital heart disease (CHD) during different stressful periods. Predictors of these problems and also implications for clinical practice will be mentioned. Having a child with CHD can be very stressful for parents, who have to face overwhelming emotions and also extra physical, financial, and other practical challenges. Parental distress has been reported in 30-80% of parents and appears not to be related to severity of CHD. Parental mental health, parenting, the parent-child relationship, and parental quality of life can all be affected. Parents, and especially mothers, are at risk of psychological distress, anxiety, depression, somatization, hopelessness, and posttraumatic stress symptoms, which in turn may influence mother's responsiveness. In the long term, the majority of parents adapt successfully to living with a child with CHD, but approximately 40% report a need for psychosocial care. These families may be helped by early psychosocial interventions to alleviate stress and reduce children's emotional and behavioral problems. A holistic approach to early psychosocial interventions should aim at improving coping and enhance parenting. During routine medical checkups, medical professionals should ask about parental stress, family functioning, and psychosocial functioning of the child and, when needed, adequate psychosocial care should be provided.

摘要

本综述将简要描述患有(非综合征性)先天性心脏病(CHD)儿童的父母在不同压力时期的心理健康问题。还将提及这些问题的预测因素以及对临床实践的影响。孩子患有先天性心脏病对父母来说压力巨大,他们不得不面对强烈的情绪,还要应对额外的身体、经济和其他实际挑战。据报道,30%至80%的父母存在困扰,且似乎与先天性心脏病的严重程度无关。父母的心理健康、育儿方式、亲子关系以及父母的生活质量都会受到影响。父母,尤其是母亲,有出现心理困扰、焦虑、抑郁、躯体化、绝望和创伤后应激症状的风险,而这些反过来又可能影响母亲的反应能力。从长远来看,大多数父母能成功适应与患有先天性心脏病的孩子一起生活,但约40%的人表示需要心理社会护理。早期心理社会干预可能有助于这些家庭减轻压力,减少孩子的情绪和行为问题。早期心理社会干预的整体方法应旨在改善应对能力并加强育儿。在常规体检期间,医疗专业人员应询问父母的压力、家庭功能以及孩子的心理社会功能,并在需要时提供适当的心理社会护理。