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先天性心脏病患儿父母的心理健康问题

Mental Health Problems in Parents of Children with Congenital Heart Disease.

作者信息

Kolaitis Gerasimos A, Meentken Maya G, Utens Elisabeth M W J

机构信息

Department of Child Psychiatry, Medical School, "Aghia Sophia" Children's Hospital, National and Kapodistrian University of Athens, Athens, Greece.

Department of Child and Adolescent Psychiatry/Psychology, Erasmus MC - Sophia Children's Hospital, Rotterdam, Netherlands.

出版信息

Front Pediatr. 2017 May 8;5:102. doi: 10.3389/fped.2017.00102. eCollection 2017.

Abstract

This review will provide a concise description of mental health problems in parents of children with a (non-syndromic) congenital heart disease (CHD) during different stressful periods. Predictors of these problems and also implications for clinical practice will be mentioned. Having a child with CHD can be very stressful for parents, who have to face overwhelming emotions and also extra physical, financial, and other practical challenges. Parental distress has been reported in 30-80% of parents and appears not to be related to severity of CHD. Parental mental health, parenting, the parent-child relationship, and parental quality of life can all be affected. Parents, and especially mothers, are at risk of psychological distress, anxiety, depression, somatization, hopelessness, and posttraumatic stress symptoms, which in turn may influence mother's responsiveness. In the long term, the majority of parents adapt successfully to living with a child with CHD, but approximately 40% report a need for psychosocial care. These families may be helped by early psychosocial interventions to alleviate stress and reduce children's emotional and behavioral problems. A holistic approach to early psychosocial interventions should aim at improving coping and enhance parenting. During routine medical checkups, medical professionals should ask about parental stress, family functioning, and psychosocial functioning of the child and, when needed, adequate psychosocial care should be provided.

摘要

本综述将简要描述患有(非综合征性)先天性心脏病(CHD)儿童的父母在不同压力时期的心理健康问题。还将提及这些问题的预测因素以及对临床实践的影响。孩子患有先天性心脏病对父母来说压力巨大,他们不得不面对强烈的情绪,还要应对额外的身体、经济和其他实际挑战。据报道,30%至80%的父母存在困扰,且似乎与先天性心脏病的严重程度无关。父母的心理健康、育儿方式、亲子关系以及父母的生活质量都会受到影响。父母,尤其是母亲,有出现心理困扰、焦虑、抑郁、躯体化、绝望和创伤后应激症状的风险,而这些反过来又可能影响母亲的反应能力。从长远来看,大多数父母能成功适应与患有先天性心脏病的孩子一起生活,但约40%的人表示需要心理社会护理。早期心理社会干预可能有助于这些家庭减轻压力,减少孩子的情绪和行为问题。早期心理社会干预的整体方法应旨在改善应对能力并加强育儿。在常规体检期间,医疗专业人员应询问父母的压力、家庭功能以及孩子的心理社会功能,并在需要时提供适当的心理社会护理。

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