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公共生命伦理学中的包容、准入和平等。

Inclusion, Access, and Civility in Public Bioethics.

出版信息

Hastings Cent Rep. 2017 May;47 Suppl 1:S46-S49. doi: 10.1002/hast.721.

Abstract

I could tell many war stories about my experience serving on the President's Council on Bioethics-one of the most controversial national bioethics commissions so far-but I want to focus instead on how the experience influenced my views on bioethics, politics, and the potential contributions of national commissions. The executive order that established the Council directed it to consider policy questions, but it spoke primarily of providing a forum for national discussion, inquiry, and education. In this sense, the Council's mission departed from that of other national bioethics commissions, which have had more direct policy functions. Most bioethics commissions consider a range of ethical positions in their reports, but their primary objective has been to develop consensus recommendations on whatever topic they are addressing. The Council's executive order moved away from the consensus-based policy model and called for deep attention to contested ideas. Although the search for consensus may be the most suitable approach for policy activities, it can lead to a bland and anemic version of bioethics. The Council sought to contribute thick bioethical analysis.

摘要

我可以讲述许多关于我在总统生物伦理委员会任职的经历——这是迄今为止最具争议的国家生物伦理委员会之一——但我想将重点放在这段经历如何影响我对生物伦理学、政治以及国家委员会的潜在贡献的看法上。设立该委员会的行政命令指示其考虑政策问题,但主要是为国家讨论、调查和教育提供一个论坛。从这个意义上说,委员会的使命与其他国家生物伦理委员会不同,后者具有更直接的政策职能。大多数生物伦理委员会在其报告中考虑了一系列伦理立场,但它们的主要目标是就其正在处理的任何主题制定共识建议。委员会的行政命令摒弃了基于共识的政策模式,呼吁深入关注有争议的观点。尽管寻求共识可能是政策活动最适合的方法,但它可能导致生物伦理学的平淡和无力。委员会寻求提供深入的生物伦理分析。

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