Department of Neurology, AZ Sint-Jan Brugge Oostende, Brugge, Belgium.
Department of Psychology, AZ Sint-Jan Brugge Oostende, Brugge, Belgium.
Eur J Neurol. 2017 Jul;24(7):995-998. doi: 10.1111/ene.13325. Epub 2017 May 23.
A Consensus document on palliative care and neurology has made recommendations on the care of people with chronic and progressive neurological disease. This study aimed to investigate whether these recommendations are understood by, acceptable to and used in practice by neurologists in Belgium.
An online survey was undertaken of 100 neurologists in Belgium, asking for their opinion on all of the recommendations in the Consensus document.
Sixty-four of the neurologists replied. Overall, they expressed support for the recommendations, in particular open communication with patients, open assessment of patient and family needs, and discussion of dying. There was less understanding of the role of palliative care in the implementation of palliative care early in disease progression and the role of palliative care multidisciplinary teams.
The survey shows that many of the recommendations in the European Academy of Neurology/European Association for Palliative Care Taskforce on Neurology Consensus document are understood by neurologists, and several are now seen as part of normal clinical practice. However, there is still a need to develop a more collaborative approach between neurology and palliative care services, for the benefit of patients and families.
一份关于姑息治疗和神经病学的共识文件就慢性和进行性神经疾病患者的护理提出了建议。本研究旨在调查这些建议是否被比利时的神经病学家所理解、接受和应用于实践。
对 100 名比利时神经病学家进行了在线调查，就共识文件中的所有建议征求他们的意见。
64 名神经病学家作出了回应。总体而言，他们对这些建议表示支持，特别是与患者的开放沟通、对患者和家庭需求的开放评估以及对临终问题的讨论。他们对姑息治疗在疾病早期进展阶段实施姑息治疗中的作用以及姑息治疗多学科团队的作用的理解较少。
调查显示，欧洲神经病学学会/欧洲姑息治疗协会神经病学工作组共识文件中的许多建议已被神经病学家理解，其中一些现在被视为常规临床实践的一部分。然而，仍有必要在神经病学和姑息治疗服务之间建立更具协作性的方法，以造福患者及其家属。
