Department of Oncology and Danish Knowledge Centre of Rehabilitation and Palliation (REHPA), Odense University Hospital, Odense C, Denmark.
School of Nursing and Midwifery, Menzies Health Institute, Griffith University, Meadowbrook, Logan, QLD, Australia.
J Clin Nurs. 2018 Jan;27(1-2):e154-e161. doi: 10.1111/jocn.13894. Epub 2017 Jul 17.
This study aimed to compare family functioning and perceptions of support from nurses among Danish and Australian adult oncology patients and family members.
Family can have a strong influence on the health of individuals, providing support during a health crisis such as cancer. However, family functioning and supportive care from nurses may vary across cultures and settings.
A descriptive, cross-sectional comparative design with patients and family members from Denmark and Australia. Participants were asked to fill in translated versions of the Iceland-Expressive Family Functioning Questionnaire (ICE-EFFQ) and Iceland-Expressive Family Perceived Support Questionnaire (ICE-FPSQ).
In total, 232 participants were recruited. The Danish cohort consisted of 56 patients and 54 family members. The Australian cohort consisted of 83 patients and 39 family members. Mean age was 59 years. No significant differences were found between Danish and Australian families. However, compared to patients, family members reported significantly lower overall family functioning, expressive emotions and communication, as well as less emotional support from nurses.
Family functioning was comparable between Denmark and Australia. Family members reported less emotional support than patients. Nurses need to consider the patient and the family as a unit with complex needs that require monitoring and attention during oncology treatment.
Families supporting a member with cancer have significant and often unmet needs. Assessment, information-sharing and health education need to include the family. Supportive care information may be shared between Denmark and Australia and inspires the development of common guidelines for optimal family nursing practice.
本研究旨在比较丹麦和澳大利亚成年肿瘤患者及其家属的家庭功能和护士支持感知。
家庭对个体的健康有很大的影响，在癌症等健康危机期间提供支持。然而，家庭功能和护士的支持性护理可能因文化和环境而异。
采用描述性、跨文化比较设计，丹麦和澳大利亚的患者和家属参加了本研究。参与者被要求填写冰岛表达性家庭功能问卷（ICE-EFFQ）和冰岛表达性家庭感知支持问卷（ICE-FPSQ）的翻译版本。
共招募了 232 名参与者。丹麦组由 56 名患者和 54 名家属组成。澳大利亚组由 83 名患者和 39 名家属组成。平均年龄为 59 岁。丹麦和澳大利亚家庭之间没有发现显著差异。然而，与患者相比，家属报告的家庭功能、表达情感和沟通以及护士提供的情感支持明显较低。
丹麦和澳大利亚的家庭功能相当。家属比患者报告的情感支持较少。护士需要将患者和家庭视为一个有复杂需求的单位，在肿瘤治疗期间需要进行监测和关注。
支持癌症患者的家庭有重要的、往往未得到满足的需求。评估、信息共享和健康教育需要包括家庭。支持性护理信息可以在丹麦和澳大利亚之间共享，并激发为最佳家庭护理实践制定共同指南的发展。
