囊性纤维化不断变化的流行病学和人口统计学特征。
The changing epidemiology and demography of cystic fibrosis.
作者信息
Stephenson Anne L, Stanojevic Sanja, Sykes Jenna, Burgel Pierre-Regis
机构信息
University of Toronto, St-Michael's hospital, Li Ka Shing knowledge institute, Keenan research centre, department of medicine, adult CF program, 30, Bond street, 6th floor, Bond Wing, M5B 1W8 Toronto, ON, Canada; University of Toronto, institute of health policy, management and evaluation, Toronto, ON, Canada.
The hospital for sick children, division of respiratory medicine, Toronto, ON, Canada; University of Toronto, institute of health policy, management and evaluation, Toronto, ON, Canada.
出版信息
Presse Med. 2017 Jun;46(6 Pt 2):e87-e95. doi: 10.1016/j.lpm.2017.04.012. Epub 2017 May 26.
Once considered a pediatric disease with a poor prognosis, individuals born with cystic fibrosis (CF) today can expect to live well into adulthood. The implementation of multidisciplinary care, novel treatments and newborn screening has resulted in the rapid evolution in the demographics of the CF population. The purpose of this review is to highlight the evolving epidemiology and demographics of the CF population internationally.
囊性纤维化（CF）曾被认为是一种预后不良的儿科疾病，而如今患有CF的新生儿有望活到成年。多学科护理、新型治疗方法和新生儿筛查的实施，使得CF患者群体的人口统计学特征迅速演变。本综述的目的是突出国际上CF患者群体不断变化的流行病学和人口统计学特征。
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