家庭对有技术依赖型特殊医疗需求儿童照料的担忧。
Families' concerns about the care of children with technology-dependent special health care needs.
作者信息
de Souza Esteves Joyce, da Silva Liliane Faria, Santos da Conceição Daniele, Dórea Paiva Eny
机构信息
Fluminense Federal University - UFF, Niterói, RJ, Brazil.
Institute Fernandes Figueira - IFF, Rio de Janeiro, RJ, Brazil.
出版信息
Invest Educ Enferm. 2015 Dec;33(3):547-555. doi: 10.17533/udea.iee.v33n3a19.
OBJECTIVE
To identify concerns of family members of Children with Special Health Care Needs (CSHCN) as far as care related to using technology, and to discuss nurses' performance in the face of these concerns.
METHODOLOGY
Qualitative descriptive research, developed through February and March 2014, through semi-structured interviews with six family members, caregivers of technology-dependent CSHCN who are followed at a University Hospital in Rio de Janeiro. The setting chosen was the family members' home. Data were submitted to content analysis.
RESULTS
Concerns were distributed in a timeframe, divided between those occurring the moment the family members received the information about the technological device needed, then those which arose while accompanying the child during hospitalization, and finally those that remained after the hospital discharge.
CONCLUSION
The family needs information and support from nurses, because different concerns emerge throughout the treatment and accompaniment of a technology-dependent child.
目的
确定有特殊医疗需求儿童（CSHCN）的家庭成员在与技术使用相关护理方面的担忧，并探讨护士面对这些担忧时的表现。
方法
定性描述性研究，于2014年2月至3月开展，通过对六名家庭成员进行半结构式访谈，这些家庭成员是里约热内卢一家大学医院所跟踪的依赖技术的CSHCN的照料者。选择的地点是家庭成员的家中。数据进行了内容分析。
结果
担忧分布在一个时间范围内，分为家庭成员收到所需技术设备信息时出现的担忧、在陪伴孩子住院期间出现的担忧，以及出院后仍然存在的担忧。
结论
家庭需要护士提供信息和支持，因为在照料依赖技术的儿童的整个过程中会出现不同的担忧。
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