Chen Min-Chia, Chiu Yi-Chen, Wei Pi-Mei, Hsu Wen-Chuin
Community Medicine Department, En Chu Kong Hospital, Taiwan, ROC.
School of Nursing, College of Medicine, Chung Gung University, Taiwan, ROC.
Hu Li Za Zhi. 2017 Jun;64(3):105-111. doi: 10.6224/JN.000046.
The long-term care of cognitively impaired patients with concomitant behavioral problems brings great stress and burdens to family caregivers. The present article describes a family caregiver with multiple chronic diseases who concurrently shouldered primary care responsibilities for her husband, a patient with mild cognitive impairment, problematic behaviors, and medication non-adherence issues. The period of care was between September 23rd and December 29th, 2015. Data on physiological, psychological, and social burdens were collected based on a stress process model for family caregiving. We then applied a home-based, individually tailored intervention, which included nursing education, skills training, listening/counseling, and resource connecting, that effectively helped the family caregiver reduce her burdens. Our assessment identified nursing-care-related problems as the primary source of caregiver burden in this case, with identified stressors including a lack of knowledge regarding patient care, medication management problems, sleep disorders, and inadequate social resources. Using continuous care interactions, we established a trust relationship with the family caregiver, prioritized her needs, and provided dementia care knowledge and skills, which gradually improved her caregiving competence. Our instruction included increasing caregiver understanding of the disease course of dementia, related problematic behaviors, and medication management. Our intervention enhanced the disease awareness of the caregiver and helped her become more positive about her caregiving tasks. Therefore, the negative impacts on her family were reduced. Social support and long-term care resources further reduced her burden and improved her quality of life.
对伴有行为问题的认知障碍患者进行长期护理,给家庭照料者带来了巨大的压力和负担。本文描述了一位患有多种慢性病的家庭照料者,她同时承担着对丈夫的主要照料责任,其丈夫患有轻度认知障碍、存在行为问题且有用药依从性问题。护理期为2015年9月23日至12月29日。基于家庭照料压力过程模型收集了生理、心理和社会负担方面的数据。然后我们实施了一项居家、个性化定制的干预措施,包括护理教育、技能培训、倾听/咨询以及资源对接,有效帮助这位家庭照料者减轻了负担。我们的评估确定护理相关问题是该案例中照料者负担的主要来源,已识别的压力源包括缺乏患者护理知识、用药管理问题、睡眠障碍以及社会资源不足。通过持续的护理互动,我们与家庭照料者建立了信任关系,优先考虑她的需求,并提供痴呆症护理知识和技能,逐渐提高了她的照料能力。我们的指导包括增强照料者对痴呆症病程、相关行为问题以及用药管理的理解。我们的干预提高了照料者的疾病认知,并帮助她对照料任务更加积极。因此,对其家庭的负面影响得以减轻。社会支持和长期护理资源进一步减轻了她的负担,提高了她的生活质量。