Cruz-Oliver Dulce M, Parikh Manas, Wallace Cara L, Malmstrom Theodore K, Sanchez-Reilly Sandra
1 Division of Geriatrics Medicine, Saint Louis University, St Louis, MO, USA.
2 Department of Pediatrics, Washington University School of Medicine in Saint Louis, St Louis, MO, USA.
Am J Hosp Palliat Care. 2018 Mar;35(3):404-410. doi: 10.1177/1049909117709550. Epub 2017 Jun 8.
US Latinos historically have underutilized end-of-life (EOL) resources. This study reports the views of family caregivers before and after education intervention Caregivers Like Me geared to improve knowledge and attitudes regarding EOL resources among Latino caregivers.
This is a qualitative substudy within a multicentered cross-sectional study design. Educational intervention was offered to family caregivers of Latino elders from 3 different communities, using an audiovisual presentation, including a case-based video telenovela and pre-posttest questionnaires with open-ended questions. This study pertains to the qualitative results for the open-ended questions before and after education intervention.
Participants (N = 145) were mostly females (79%) with a mean age of 56 ± 15 years and reported (92%) active learning from intervention. The pretest open-ended question on expected learning identified 2 themes, care for the sick and self-care. It included 5 subthemes and the most common one was how to help the sick. The posttest question on actual learning identified the same 2 themes and 4 subthemes that were similar but different from the pretest. Accepting help and knowledge of services available were the most common.
The education intervention Caregivers Like Me was able to improve attitudes toward EOL care because participants who wanted to help their loved ones realized that they need to accept professional help and were made aware of the services available.
美国拉丁裔人群历来对临终关怀资源利用不足。本研究报告了在开展旨在提高拉丁裔护理人员对临终关怀资源的知识和态度的教育干预“像我这样的护理人员”前后,家庭护理人员的观点。
这是一项多中心横断面研究设计中的定性子研究。通过视听演示,包括一部基于案例的视频肥皂剧以及带有开放式问题的前后测问卷,对来自3个不同社区的拉丁裔老年人的家庭护理人员进行教育干预。本研究涉及教育干预前后开放式问题的定性结果。
参与者(N = 145)大多为女性(79%),平均年龄56 ± 15岁,且报告称(92%)从干预中积极学习。预测试中关于预期学习的开放式问题确定了2个主题,即照顾病人和自我护理。它包括5个子主题,最常见的是如何帮助病人。后测试中关于实际学习的问题确定了相同的2个主题和4个子主题,与预测试相似但不同(接受帮助和了解可用服务是最常见的)。
“像我这样的护理人员”教育干预能够改善对临终关怀的态度,因为那些想要帮助亲人的参与者意识到他们需要接受专业帮助,并了解到可用的服务。