Terry Paul E
Health Enhancement Research Organization (HERO).
Am J Health Promot. 2017 Jul;31(4):271-273. doi: 10.1177/0890117117715043.
The proposed "Preserving Employee Wellness Programs Act" states that the collection of information about the manifested disease or disorder of a family member shall not be considered an unlawful acquisition of genetic information. The bill recognizes employee privacy protections that are already in place and includes specific language relating to nondiscrimination based on illness. Why did legislation expressly intending to "preserve wellness programs" generate such antipathy about wellness among journalists? This article argues that those who are committed to preserving employee wellness must be equally committed to preserving employee privacy. Related to this, we should better parse between discussions and rules about commonplace health screenings versus much less common genetic testing.
拟议的《维护员工健康计划法案》规定，收集家庭成员已确诊疾病或病症的信息不应被视为非法获取基因信息。该法案认可现有的员工隐私保护措施，并包含了与不因疾病而歧视相关的具体措辞。为何一项明确旨在“维护健康计划”的立法会引发记者们对健康问题如此强烈的反感呢？本文认为，致力于维护员工健康的人必须同样致力于维护员工隐私。与此相关的是，我们应该更好地区分关于普通健康筛查与极少见的基因检测的讨论和规定。
