1 Applied Psychology and Human Development, Joint Centre for Bioethics, University of Toronto. Toronto, Ontario, Canada.
Qual Health Res. 2017 Dec;27(14):2150-2161. doi: 10.1177/1049732317717961. Epub 2017 Jul 14.
The refusal of blood products by Jehovah's Witness patients has provoked court proceedings, social science research, and contemporary fiction, all of which emphasize a seemingly intractable conflict between religious and secular ways of being. This article takes a different approach, focusing instead on the space that Witness patients have carved out for their accommodation in a major pediatric research hospital. Using discourse analysis and interview data, I map the way moralizing discourses surrounding Witness families have shifted over the past 70 years alongside advancements in bloodless medicine. I argue that Witnesses have helped to enable their present accommodation and recognition by marshaling particular forms of economic, human, and social capital, and consider whether their success might be attainable by other treatment-resisting patient groups. Thus, this article explores the shifting limits of multicultural accommodation and the conditions that make understanding, collaboration, and compromise possible.
耶和华见证会患者拒绝血制品的行为引发了法庭诉讼、社会科学研究和当代小说,所有这些都强调了宗教和世俗生活方式之间似乎难以调和的冲突。本文采取了不同的方法,而是专注于见证会患者在一家主要儿科研究医院中为自己的适应留出的空间。使用话语分析和访谈数据,我绘制了围绕见证会家庭的道德话语在过去 70 年中随着无血医学的进步而发生变化的方式。我认为,见证会通过调动特定形式的经济、人力和社会资本,帮助他们实现了目前的适应和认可,并考虑他们的成功是否可能被其他抵制治疗的患者群体所获得。因此,本文探讨了多元文化适应的不断变化的界限,以及理解、合作和妥协成为可能的条件。