Meier Friedhelm, Ried Jens, Braun Matthias, Dabrock Peter
Friedrich-Alexander-Universität Erlangen-Nürnberg, Fachbereich Theologie, Systematische Theologie II (Ethik).
Friedrich-Alexander-Universität Erlangen-Nürnberg, Center for Management, Technology and Society.
Gesundheitswesen. 2017 Aug;79(8-09):594-598. doi: 10.1055/s-0043-109862. Epub 2017 Jul 14.
Currently it is not clear, whether and which specific prophylactic measures the healthcare system should provide as a standard offer for persons with genetic risks. Furthermore, there is no theoretical model for transparent regulation in this context. In the concrete case of BRCA1/2 carriers, the consequences of these defects become obvious: requests for medical measures are subjected to decision-making procedures of health insurance companies that are not wholly transparent. Against the background of medical advance in relation to complex diseases and in order to address this problem of the healthcare system, this article develops a healthy-sick model. This model gives a frame for identifying the medical demand of persons at risk of genetic diseases and for classifying the status of the persons concerned in the healthcare system.
目前尚不清楚医疗保健系统是否应提供以及应提供哪些具体的预防措施，作为对有遗传风险者的标准服务。此外，在这种情况下，没有用于透明监管的理论模型。在BRCA1/2基因携带者的具体案例中，这些缺陷的后果显而易见：医疗措施的申请要经过医疗保险机构的决策程序，而这些程序并不完全透明。鉴于复杂疾病方面的医学进展，为了解决医疗保健系统的这一问题，本文构建了一个健康-疾病模型。该模型为确定遗传疾病风险人群的医疗需求以及对医疗保健系统中相关人员的状况进行分类提供了一个框架。
