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对阿根廷癌症患儿心理社会护理提供情况的人种志探索。

An ethnographic exploration of the delivery of psychosocial care to children with cancer in Argentina.

作者信息

Brage Eugenia, Vindrola-Padros Cecilia

机构信息

Facultad de Filosofia y Letras, Universidad de Buenos Aires, CONICET, Buenos Aires, Argentina.

Department of Applied Health Research, University College London (UCL), London, UK.

出版信息

Eur J Oncol Nurs. 2017 Aug;29:91-97. doi: 10.1016/j.ejon.2017.05.002. Epub 2017 Jun 7.

DOI:10.1016/j.ejon.2017.05.002
PMID:28720272
Abstract

PURPOSE

The integration of psychosocial care in the routine care of cancer patients has been set as an international standard, but there are healthcare contexts where these services are lacking as psychosocial care providers are not incorporated in multidisciplinary teams and screening for psychological distress is not carried out routinely or systematically.

METHOD

In this article, we discuss the findings from an ethnographic study that focused on exploring the working experiences of psychosocial care providers from one children's hospital in Buenos Aires, Argentina. The study is based on 10 in-depth interviews with hospital staff members and participant observation in selected hospital areas. The transcripts from the interviews and fieldnotes from the observations were analyzed using thematic analysis.

RESULTS

We found that psychosocial care providers encounter difficulties while attempting to deliver services to children and their families, produced mainly by their lack of collaboration with other professional groups, insufficient human resources, and a growing patient population. As a result of this situation, psychosocial care providers often prioritize some patients over others, leaving a considerable number of patients and family members without psychosocial support.

CONCLUSIONS

The study highlighted the barriers psychosocial care providers encounter while attempting to deliver services to children and their families. Further work needs to be carried out to fully integrate psychosocial care in national health policies and ensure this type of support is available for all patients and their families.

摘要

目的

将心理社会护理纳入癌症患者的常规护理已被设定为一项国际标准,但在一些医疗环境中,由于心理社会护理提供者未被纳入多学科团队,且未常规或系统地开展心理困扰筛查,这些服务尚付阙如。

方法

在本文中,我们讨论了一项人种志研究的结果,该研究聚焦于探索阿根廷布宜诺斯艾利斯一家儿童医院中心理社会护理提供者的工作经历。该研究基于对医院工作人员的10次深度访谈以及在选定医院区域的参与观察。使用主题分析法对访谈记录和观察的实地记录进行了分析。

结果

我们发现,心理社会护理提供者在试图为儿童及其家庭提供服务时遇到困难,主要原因是他们与其他专业群体缺乏协作、人力资源不足以及患者人数不断增加。由于这种情况,心理社会护理提供者常常优先照顾部分患者,导致相当多的患者及其家庭成员得不到心理社会支持。

结论

该研究突出了心理社会护理提供者在试图为儿童及其家庭提供服务时遇到的障碍。需要开展进一步工作,以便将心理社会护理全面纳入国家卫生政策,并确保为所有患者及其家庭提供此类支持。

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