Jacob Divya Ann, Franklin Linda, Bernstein Bruce, Pall Harpreet
St Christopher's Hospital for Children, Drexel University College of Medicine, Philadelphia, PA, USA.
J Patient Exp. 2015 Nov;2(2):23-28. doi: 10.1177/2374373515615978. Epub 2015 Nov 1.
Gastrointestinal endoscopy in children has become a standard diagnostic and therapeutic modality. The aim of our study was to characterize the most memorable elements of the patient experience from the parent's and patient's perspective and determine ways to improve the overall quality of their experience.
Using a structured questionnaire, we conducted 47 phone interviews with families who had recently undergone gastrointestinal endoscopic procedures.
Our study showed clear communication and mutual agreement on care decisions contributed to positive experiences. Inadequate communication of information regarding alternatives to the procedure and risk of complications during the informed consent discussion contributed to negative patient experiences. Standardization of postprocedure follow-up and timely communication of pathology findings also had potential for improvement.
Our study revealed 2 areas for quality improvement interventions: The need to ensure that alternatives and complications are thoroughly discussed and the need for standardization of postprocedure follow-up.
儿童胃肠内镜检查已成为一种标准的诊断和治疗方式。我们研究的目的是从家长和患儿的角度描述患者体验中最令人难忘的因素,并确定改善其总体体验质量的方法。
我们使用结构化问卷对近期接受过胃肠内镜检查的家庭进行了47次电话访谈。
我们的研究表明,护理决策方面清晰的沟通和相互认同有助于产生积极的体验。在知情同意讨论过程中,关于该检查替代方案和并发症风险的信息沟通不足会导致患者产生负面体验。术后随访的标准化以及病理结果的及时沟通也有改进的空间。
我们的研究揭示了质量改进干预的两个领域:需要确保对替代方案和并发症进行充分讨论,以及需要对术后随访进行标准化。