Laugesen Britt, Lauritsen Marlene Briciet, Jørgensen Rikke, Sørensen Erik Elgaard, Grønkjær Mette, Rasmussen Philippa
Clinic for Woman and Child Diseases and Urology, Aalborg University Hospital, Denmark.
Research Unit for Child and Adolescent Psychiatry, Aalborg University Hospital, Denmark.
J Pediatr Nurs. 2017 Jul-Aug;35:105-112. doi: 10.1016/j.pedn.2017.03.001. Epub 2017 Apr 12.
The aim of this qualitative study was to explore parental experiences of how healthcare practices and healthcare professionals in hospital clinics in Denmark influence everyday life of parents with a child with ADHD.
The methodology was focused ethnography. Participant observation and interviews were used as the primary data collection methods. Fifteen families of children with ADHD were included from somatic and psychiatric hospital clinics.
Three main themes emerged from the experiences of the families: When the house of cards collapses in everyday life, Treading water before and after receiving the ADHD diagnosis, and Healthcare as a significant lifeline.
Accessibility to healthcare, trusting relationships and healthcare professionals recognizing how ADHD pervades all aspects of everyday life appear to be important factors in providing a lifeline for parents to help them regain confidence and control in disruptive phases. The parents depend on help from healthcare professionals and family-centred care to manage the complex challenges in everyday life.
这项定性研究的目的是探讨丹麦医院诊所的医疗实践和医疗专业人员如何影响患有注意力缺陷多动障碍(ADHD)儿童的父母的日常生活体验。
采用聚焦民族志方法。参与观察和访谈作为主要的数据收集方法。从综合医院和精神科医院诊所纳入了15个患有ADHD儿童的家庭。
家庭体验中出现了三个主要主题:当日常生活中的纸牌屋倒塌时、在ADHD诊断前后艰难维持、以及医疗保健作为重要的生命线。
获得医疗保健服务、信任关系以及医疗专业人员认识到ADHD如何渗透到日常生活的各个方面,这些似乎是为父母提供生命线以帮助他们在混乱阶段重新获得信心和控制的重要因素。父母依赖医疗专业人员的帮助和以家庭为中心的护理来应对日常生活中的复杂挑战。