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患有注意力缺陷多动障碍的孩子的父母所经历的挑战。

Challenges experienced by parents living with a child with attention deficit hyperactivity disorder.

作者信息

Mofokeng Meisie, van der Wath Anna E

机构信息

a Department of Nursing Science , University of Pretoria , Pretoria , South Africa.

出版信息

J Child Adolesc Ment Health. 2017 Sep;29(2):137-145. doi: 10.2989/17280583.2017.1364253.

Abstract

OBJECTIVE

The aim of this South African study was to explore parents' experiences of living with a child with attention deficit hyperactivity disorder (ADHD).

METHODS

A qualitative research design was followed. Purposive sampling was used to select ten parents living with children diagnosed with ADHD receiving outpatient treatment at a psychiatric facility. Data, collected through unstructured individual interviews, were analysed using open coding. Measures to ensure trustworthiness and ethical research practices were applied.

RESULTS

Five themes emerged: burden of care; emotional effects; social effects; impact of the educational challenges, and attempts to cope with the burden of care.

CONCLUSION

Parents living with a child with ADHD experience stress as they struggle to cope with the child's symptoms amidst the stigmatising attitudes from family and community members. Parents experience burdensome emotions and impaired social and occupational functioning. Health care practitioners need to take note of the challenges inherent to parenting a child with ADHD in order to provide multi-disciplinary interventions aimed at empowering and supporting parents.

摘要

目的

这项南非研究的目的是探索患有注意力缺陷多动障碍(ADHD)儿童的家长的生活经历。

方法

采用定性研究设计。采用目的抽样法,选取了十位在一家精神科机构接受门诊治疗的、其子女被诊断患有ADHD的家长。通过非结构化的个人访谈收集数据,并使用开放式编码进行分析。采取了确保研究可信度和符合伦理研究规范的措施。

结果

出现了五个主题:照料负担;情感影响;社会影响;教育挑战的影响,以及应对照料负担的尝试。

结论

患有ADHD儿童的家长在努力应对孩子的症状时会经历压力,同时还要面对来自家人和社区成员的歧视态度。家长们会体验到沉重的情绪,社会和职业功能也会受损。医疗从业者需要注意养育患有ADHD儿童所固有的挑战,以便提供旨在增强家长能力和给予支持的多学科干预措施。

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