Division of Respiratory Diseases, Department of Medicine, Boston Children's Hospital, Boston, MA, United States; Institute for Healthcare Improvement, Cambridge, MA, United States.
Division of Respiratory Diseases, Department of Medicine, Boston Children's Hospital, Boston, MA, United States.
J Cyst Fibros. 2018 Jan;17(1):57-63. doi: 10.1016/j.jcf.2017.07.017. Epub 2017 Aug 1.
The prevalence of general and disease-specific sexual and reproductive health (SRH) concerns is unknown in the United States (U.S.) female CF population. This study aimed to describe and compare the SRH experiences and behaviors of young women with CF with the general U.S.
Young women with CF ages 15-24years from five geographically diverse U.S. CF centers participated in a survey investigating SRH. Results were summarized and compared to the U.S. National Survey of Family Growth (NSFG) using logistic regression adjusting for confounders.
A total of 188 young women with CF (mean age 19.7±2.7years) completed the survey; data were compared to 1997 NSFG respondents (mean age 19.6±0.10years). Fifty-four percent of women with CF reported having had vaginal sex with a male partner compared to 66% of U.S. women (p=0.55). Women with CF were less likely to have ever used contraception (55% vs. 74%, p=0.0001) or have been tested for sexually transmitted infections in the past year (19% vs. 34%, p=0.001) compared to the general population. Two percent of women with CF reported having ever been pregnant compared to 24% of U.S. women (p<0.0001). One-third of young women with CF reported perceived pubertal delay, 16% urinary incontinence, 16% sexual dysfunction, and 49% yeast infections.
Young women with CF face significant SRH concerns and appear to be experiencing gaps in SRH care provision. Opportunities exist for intervention development around this aspect of comprehensive CF care.
CF Foundation (KAZMER15A0); U.S. National Institutes of Health (UL1TR000005).
美国（美国）女性 CF 人群中，一般和特定疾病的性健康和生殖健康（SRH）的流行情况尚不清楚。本研究旨在描述和比较年轻 CF 女性的 SRH 经历和行为与美国普通人群的异同。
来自美国五个地理位置不同的 CF 中心的 15-24 岁 CF 年轻女性参与了一项调查 SRH 的调查。使用调整混杂因素的逻辑回归对结果进行总结并与美国全国家庭增长调查（NSFG）进行比较。
共有 188 名 CF 年轻女性（平均年龄 19.7±2.7 岁）完成了调查；将数据与 1997 年 NSFG 受访者（平均年龄 19.6±0.10 岁）进行比较。54%的 CF 女性报告与男性伴侣发生过阴道性行为，而美国女性的这一比例为 66%（p=0.55）。与普通人群相比，CF 女性使用过避孕措施的比例较低（55%比 74%，p=0.0001）或在过去一年中进行过性传播感染检测的比例较低（19%比 34%，p=0.001）。与美国女性相比，CF 女性中曾有过怀孕经历的比例为 2%，而美国女性的比例为 24%（p<0.0001）。三分之一的 CF 年轻女性报告有青春期延迟，16%有尿失禁，16%有性功能障碍，49%有真菌感染。
年轻的 CF 女性面临着严重的 SRH 问题，似乎在 SRH 护理提供方面存在差距。在综合 CF 护理方面，有机会围绕这一方面开展干预措施的制定。
CF 基金会（KAZMER15A0）；美国国立卫生研究院（UL1TR000005）。
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