Division of Respiratory Diseases, Department of Medicine, Boston Children's Hospital, Boston, MA, United States; Institute for Healthcare Improvement, Cambridge, MA, United States.
Division of Respiratory Diseases, Department of Medicine, Boston Children's Hospital, Boston, MA, United States.
J Cyst Fibros. 2018 Jan;17(1):64-70. doi: 10.1016/j.jcf.2017.08.009. Epub 2017 Sep 1.
This study aimed to describe and compare the sexual and reproductive health (SRH) care utilization among young women with cystic fibrosis (CF) with the general United States (U.S.) population.
Women with CF ages 15-24years from five geographically diverse U.S. CF centers participated in a survey investigating SRH. Results were summarized and compared to a nationally representative sample of young women aged 15-24 who participated in the U.S. National Survey of Family Growth (NSFG) using logistic regression to adjust for confounders.
A total of 188 women with CF (19.7±2.7years) completed the survey; data were compared to 1997 NSFG respondents (19.6±0.10years). Women with CF had lower lifetime rates of ever obtaining a Pap smear or pelvic exam (26% vs. 57%; p<0.001) and similar rates of HPV vaccination (44% vs. 43%; p=0.64) compared to NSFG respondents. Thirty-seven percent of women with CF reported seeking contraception and <10% reported contraceptive counseling, STI testing/counseling, or pregnancy testing in their lifetime. In the prior 12months, 41% of NSFG respondents reported seeking contraception, 24% received contraceptive counseling, 22% STI testing/counseling, and 23% pregnancy testing. A minority of women with CF received or discussed SRH care in the CF setting, although 66% wanted to discuss SRH with their CF team.
Young women with CF report low rates of SRH care utilization and desire SRH discussions in the CF setting. Interventions should target improved SRH care delivery and encourage patient-provider communication around SRH in the CF care setting.
本研究旨在描述和比较囊性纤维化 (CF) 年轻女性与美国普通人群的性与生殖健康 (SRH) 保健利用情况。
来自美国五个地理位置不同的 CF 中心的 15-24 岁 CF 女性参与了一项调查 SRH 的调查。结果进行了总结，并使用逻辑回归与参加美国全国家庭增长调查 (NSFG) 的 15-24 岁年轻女性的全国代表性样本进行比较，以调整混杂因素。
共有 188 名 CF 女性（19.7±2.7 岁）完成了调查；将数据与 1997 年 NSFG 受访者（19.6±0.10 岁）进行比较。与 NSFG 受访者相比，CF 女性终身获得巴氏涂片检查或盆腔检查的比例较低（26% vs. 57%；p<0.001），HPV 疫苗接种率相似（44% vs. 43%；p=0.64）。37%的 CF 女性报告寻求避孕措施，不到 10%的人报告在其一生中接受过避孕咨询、性传播感染测试/咨询或妊娠测试。在过去的 12 个月中，41%的 NSFG 受访者报告寻求避孕措施，24%接受避孕咨询，22%接受性传播感染测试/咨询，23%接受妊娠测试。CF 女性接受或讨论过 SRH 保健服务的人数较少，但 66%的女性希望与 CF 团队讨论 SRH。
年轻的 CF 女性报告 SRH 保健服务利用率较低，并希望在 CF 环境中讨论 SRH。干预措施应侧重于改善 SRH 保健服务的提供，并鼓励 CF 保健环境中患者与提供者就 SRH 进行沟通。
