Sarigol Ordin Yaprak, Karayurt Özgül, Ünek Tarkan, Astarcıoğlu İbrahim
Surgical Nursing Department, Faculty of Nursing, Dokuz Eylül University, Izmir, Turkey.
Faculty of Health Science, Izmir University of Economics, Izmir, Turkey.
Nurs Health Sci. 2017 Sep;19(3):393-399. doi: 10.1111/nhs.12358. Epub 2017 Aug 4.
This qualitative research study describes the experiences of child and adolescent liver transplant recipients and their parents during the patients' transition to adulthood. Data were collected from pediatric liver transplant recipients and their parents during individual interviews, and these were later analyzed using conventional content analysis. Seven main themes emerged: coping, self-management, body image, social relationships, academic life, work life, and live donors. Study results revealed that the patients who received liver transplants during their childhood and adolescence used both effective and ineffective strategies to cope with the difficulties they faced during the transition period into adulthood. The parents experienced many problems: on learning of their child's need for a transplant, parents were advised that they should consider becoming a live donor. This very difficult decision was a source of great stress and required serious consideration. After transplantation the parents wanted their children to have autonomy but could not encourage them because of concerns for their health.
这项定性研究描述了儿童和青少年肝移植受者及其父母在患者向成年过渡期间的经历。通过个体访谈收集了儿科肝移植受者及其父母的数据，随后使用常规内容分析法进行分析。出现了七个主要主题：应对、自我管理、身体形象、社会关系、学术生活、工作生活和活体供体。研究结果显示，在童年和青少年时期接受肝移植的患者使用了有效和无效的策略来应对成年过渡期所面临的困难。父母们遇到了许多问题：在得知孩子需要移植后，父母被告知应考虑成为活体供体。这个非常艰难的决定带来了巨大压力，需要认真考虑。移植后，父母希望孩子拥有自主权，但出于对孩子健康的担忧又无法鼓励他们。
