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填补心脏重症监护病房的一项重大空白:实施个性化发育护理。

Filling a significant gap in the cardiac ICU: implementation of individualised developmental care.

作者信息

Butler Samantha C, Huyler Kate, Kaza Aditya, Rachwal Chris

机构信息

1Department of Psychiatry,Boston Children's Hospital,Boston,Massachusetts,United States of America.

2Department of Child Life,Boston Children's Hospital,Boston,Massachusetts,United States of America.

出版信息

Cardiol Young. 2017 Nov;27(9):1797-1806. doi: 10.1017/S1047951117001469. Epub 2017 Aug 7.

Abstract

Mortality rates among children with CHD have significantly declined, although the incidence of neurological abnormalities and neurodevelopmental impairment has increased. Research has focussed on outcomes, with limited attention on prevention and intervention. Although some developmental differences and challenges seen in children with CHD are explained by the cumulative effect of medical complications associated with CHD, many sequelae are not easily explained by medical complications alone. Although cardiac intensive care is lifesaving, it creates high levels of environmental and tactile stimulation, which potentially contribute to adverse neurodevelopmental outcomes. The therapeutic method of individualised developmental care, such as the Newborn Individualized Developmental Care and Assessment Program, provides early support and preventive intervention based on each child's behavioural signals of stress, comfort, and strength. Implementing developmental care practices in a cardiac ICU requires a thoughtful and well-planned approach to ensure successful adoption of practice changes. This paper reviews how developmental care was introduced in a paediatric inpatient cardiac service through multidisciplinary collaborative staff education, clinician support, child neurodevelopment assessment, parent support, and research initiatives. Given the known risk for children with CHD, cardiac medical professionals must shift their focus to not only assuring the child's survival but also optimising development through individualised developmental care in the cardiac ICU.

摘要

患有先天性心脏病(CHD)儿童的死亡率已显著下降,尽管神经异常和神经发育障碍的发生率有所上升。研究主要集中在结果方面,而对预防和干预的关注有限。虽然患有CHD的儿童出现的一些发育差异和挑战可由与CHD相关的医疗并发症的累积效应来解释,但许多后遗症仅靠医疗并发症并不容易解释。尽管心脏重症监护能挽救生命,但它会产生高水平的环境和触觉刺激,这可能会导致不良的神经发育结果。个性化发育护理的治疗方法,如新生儿个性化发育护理与评估计划,会根据每个孩子的压力、舒适和力量的行为信号提供早期支持和预防性干预。在心脏重症监护病房实施发育护理措施需要深思熟虑且精心规划的方法,以确保成功采用护理方式的改变。本文回顾了如何通过多学科协作的员工教育、临床医生支持、儿童神经发育评估、家长支持和研究倡议,在儿科住院心脏服务中引入发育护理。鉴于患有CHD儿童的已知风险,心脏医学专业人员必须将重点不仅转移到确保儿童存活,还要通过在心脏重症监护病房进行个性化发育护理来优化其发育。

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