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患有 CHD 的住院婴儿的发育护理路径:代表心脏新生儿神经保护网络,心脏神经发育结局协作的一个特别兴趣小组。

Developmental care pathway for hospitalised infants with CHD: on behalf of the Cardiac Newborn Neuroprotective Network, a Special Interest Group of the Cardiac Neurodevelopmental Outcome Collaborative.

机构信息

Department of Family and Community Health, University of Pennsylvania School of Nursing, Philadelphia, PA, USA.

Research Institute, Children's Hospital of Philadelphia, Philadelphia, PA, USA.

出版信息

Cardiol Young. 2023 Dec;33(12):2521-2538. doi: 10.1017/S1047951123000525. Epub 2023 Mar 30.

Abstract

Infants and children born with CHD are at significant risk for neurodevelopmental delays and abnormalities. Individualised developmental care is widely recognised as best practice to support early neurodevelopment for medically fragile infants born premature or requiring surgical intervention after birth. However, wide variability in clinical practice is consistently demonstrated in units caring for infants with CHD. The Cardiac Newborn Neuroprotective Network, a Special Interest Group of the Cardiac Neurodevelopmental Outcome Collaborative, formed a working group of experts to create an evidence-based developmental care pathway to guide clinical practice in hospital settings caring for infants with CHD. The clinical pathway, "Developmental Care Pathway for Hospitalized Infants with Congenital Heart Disease," includes recommendations for standardised developmental assessment, parent mental health screening, and the implementation of a daily developmental care bundle, which incorporates individualised assessments and interventions tailored to meet the needs of this unique infant population and their families. Hospitals caring for infants with CHD are encouraged to adopt this developmental care pathway and track metrics and outcomes using a quality improvement framework.

摘要

患有先天性心脏病的婴儿和儿童存在显著的神经发育迟缓及异常风险。个体化发育护理被广泛认为是支持早产儿或出生后需要手术干预的脆弱婴儿早期神经发育的最佳实践。然而,在照顾患有先天性心脏病的婴儿的单位中,临床实践存在广泛的变异性。心脏新生儿神经保护网络是心脏神经发育结局协作组织的一个特别兴趣小组,成立了一个专家工作组,制定了一个基于证据的发育护理路径,以指导在医院环境中照顾患有先天性心脏病的婴儿的临床实践。该临床路径“患有先天性心脏病的住院婴儿的发育护理路径”包括对标准化发育评估、父母心理健康筛查以及实施每日发育护理包的建议,该护理包包含针对这一独特婴儿群体及其家庭需求定制的个体化评估和干预措施。鼓励照顾患有先天性心脏病的婴儿的医院采用这种发育护理路径,并使用质量改进框架跟踪指标和结果。

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