Golfenshtein Nadya, Deatrick Janet A, Lisanti Amy J, Medoff-Cooper Barbara
University of Pennsylvania, School of Nursing, Claire M. Fagin Hall, Philadelphia, PA, United States.
University of Pennsylvania, School of Nursing, Claire M. Fagin Hall, Philadelphia, PA, United States.
J Pediatr Nurs. 2017 Nov-Dec;37:117-126. doi: 10.1016/j.pedn.2017.08.021. Epub 2017 Aug 12.
Mothers of infants with complex congenital heart disease are exposed to increased stress which has been associated with numerous adverse health outcomes. The coping mechanisms these mothers use critically effect the familial illness adaptation and most likely infant outcomes. Currently no data-based strategies have been developed for mothers to facilitate their coping, and proactively promote their adaptation in the critical care settings. A potential strategy is mindfulness which is currently used in other clinical settings with stress-reduction effects.
(1) To investigate coping mechanisms of mothers whose infant with complex CHD is admitted in the CICU, and (2) to explore the acceptability and feasibility of mindfulness as a potential stress-reduction intervention for these mothers.
A descriptive qualitative study obtained perspectives from 14 mothers during three focus groups. A qualitative conventional content analysis was performed using ATLAS.ti.
In congruence with the Stress and Coping framework, themes identified mostly emotion-regulatory coping mechanisms including both active and passive strategies such as positive thinking, denial, distraction, relying on support systems, and focusing on baby. Mindfulness was an acceptable and feasible approach for most participants, however, practice unfamiliarity, time and space concerns, and personal preferences were identified as potential barriers for future dissemination.
Mindfulness can potentially promote illness adaptation by utilization of active coping mechanisms. Early interventions can provide immediate, and potentially long-term stress relief. Intervention settings, format, and time-frame should be flexibly tailored to the trajectory of parental distress and familial adjustment.
患有复杂先天性心脏病婴儿的母亲面临的压力增加，这与众多不良健康结果相关。这些母亲所采用的应对机制严重影响家庭对疾病的适应情况，并且很可能影响婴儿的结局。目前尚未为母亲们制定基于数据的策略来帮助她们应对，并在重症监护环境中积极促进她们的适应。一种潜在的策略是正念，目前在其他临床环境中使用，具有减轻压力的效果。
（1）调查患有复杂先天性心脏病的婴儿入住儿童重症监护病房（CICU）的母亲的应对机制，以及（2）探讨正念作为这些母亲潜在的减压干预措施的可接受性和可行性。
一项描述性定性研究通过三个焦点小组从14位母亲那里获取了观点。使用ATLAS.ti进行了定性常规内容分析。
与应激和应对框架一致，所确定的主题大多是情绪调节应对机制，包括积极和消极策略，如积极思考、否认、分散注意力、依靠支持系统以及关注婴儿。正念对大多数参与者来说是一种可接受且可行的方法，然而，对练习的不熟悉、时间和空间方面的担忧以及个人偏好被确定为未来推广的潜在障碍。
正念可以通过利用积极的应对机制潜在地促进对疾病的适应。早期干预可以立即并可能长期缓解压力。干预的设置、形式和时间框架应根据父母痛苦和家庭适应的轨迹进行灵活调整。
