• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

先天性心脏病患儿父母的压力与适应力:健康差异研究的新前沿。

Parental stress and resilience in CHD: a new frontier for health disparities research.

作者信息

Lisanti Amy J

机构信息

1School of Nursing,University of Pennsylvania,Philadelphia,PA,USA.

出版信息

Cardiol Young. 2018 Sep;28(9):1142-1150. doi: 10.1017/S1047951118000963. Epub 2018 Jul 11.

DOI:10.1017/S1047951118000963
PMID:29991369
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC6103210/
Abstract

Parental stress is a universal experience for parents who have children diagnosed with CHD and has been studied within the context of the child's illness, but not through a broader health disparity lens. This paper provides a thorough synthesis of the current literature on parental stress addressing disparities in parents of children with CHD. Several theories and models from within this literature are described and a new comprehensive framework, the Parental Stress and Resilience in CHD Model, is presented. Future research and clinical implications are discussed.

摘要

对于那些孩子被诊断患有先天性心脏病(CHD)的父母来说,父母压力是一种普遍的经历,并且已经在孩子疾病的背景下进行了研究,但尚未从更广泛的健康差异角度进行研究。本文全面综合了当前关于父母压力的文献,探讨了患有CHD儿童的父母之间的差异。描述了该文献中的几种理论和模型,并提出了一个新的综合框架——先天性心脏病父母压力与复原力模型。还讨论了未来的研究和临床意义。

相似文献

1
Parental stress and resilience in CHD: a new frontier for health disparities research.先天性心脏病患儿父母的压力与适应力:健康差异研究的新前沿。
Cardiol Young. 2018 Sep;28(9):1142-1150. doi: 10.1017/S1047951118000963. Epub 2018 Jul 11.
2
Psychological resilience and long-term distress in Swedish and Icelandic parents' adjustment to childhood cancer.瑞典和冰岛父母对儿童癌症的适应中的心理弹性与长期困扰。
Acta Oncol. 2011 Apr;50(3):373-80. doi: 10.3109/0284186X.2010.489572. Epub 2010 Jun 30.
3
Parents of children with congenital heart defects during the COVID-19 pandemic: An examination of mental health variables, risk factors, and protective factors.COVID-19 大流行期间先天性心脏病患儿的父母:心理健康变量、风险因素和保护因素的考察。
Heart Lung. 2023 Jan-Feb;57:130-139. doi: 10.1016/j.hrtlng.2022.09.017. Epub 2022 Sep 28.
4
Parenting Stress in Parents of Infants With Congenital Heart Disease and Parents of Healthy Infants: The First Year of Life.先天性心脏病婴儿父母与健康婴儿父母的育儿压力:生命的第一年
Compr Child Adolesc Nurs. 2017 Dec;40(4):294-314. doi: 10.1080/24694193.2017.1372532. Epub 2017 Oct 17.
5
Parental experience of the neuromotor development of children with congenital heart disease: an exploratory qualitative study.先天性心脏病患儿神经运动发育的父母体验:探索性定性研究。
BMC Pediatr. 2021 Oct 1;21(1):430. doi: 10.1186/s12887-021-02808-8.
6
Stress and quality of life among parents of children with congenital heart disease referred for psychological services.因心理问题前来就诊的先天性心脏病患儿家长的压力与生活质量
Congenit Heart Dis. 2018 Jan;13(1):72-78. doi: 10.1111/chd.12547. Epub 2017 Oct 25.
7
Adapting acceptance and commitment therapy for parents of children with life-threatening illness: pilot study.为患有危及生命疾病儿童的父母调整接纳与承诺疗法:试点研究。
Fam Syst Health. 2014 Mar;32(1):122-7. doi: 10.1037/fsh0000012.
8
Resilience in children and their parents enduring pediatric medical traumatic stress.儿童及其父母在承受儿科医疗创伤性压力时的心理韧性。
Paediatr Anaesth. 2019 Mar;29(3):218-225. doi: 10.1111/pan.13573. Epub 2019 Feb 4.
9
Psychological adjustment of children with congenital hypothyroidism and phenylketonuria as related to parental psychological adjustment.先天性甲状腺功能减退症和苯丙酮尿症患儿的心理调适与父母心理调适的关系
Medicina (Kaunas). 2004;40(7):663-70.
10
Parenting stress and children with cerebral palsy: a European cross-sectional survey.养育压力与脑性瘫痪儿童:一项欧洲横断面调查。
Dev Med Child Neurol. 2011 Sep;53(9):815-821. doi: 10.1111/j.1469-8749.2011.04014.x. Epub 2011 Jun 27.

引用本文的文献

1
Burnout and related factors in mothers of preschool children.学龄前儿童母亲的职业倦怠及相关因素
Arch Womens Ment Health. 2025 May 31. doi: 10.1007/s00737-025-01596-9.
2
Stress and Quality of Life in Parents of Children with Congenital Heart Disease: Exploring the Mediating and Moderating Effects of Coping Strategies.先天性心脏病患儿父母的压力与生活质量:探究应对策略的中介和调节作用
Pediatr Cardiol. 2025 May 23. doi: 10.1007/s00246-025-03897-3.
3
Evaluating 3D-printed models for congenital heart disease: impact on parental anxiety and procedural understanding.评估先天性心脏病的3D打印模型:对父母焦虑和手术理解的影响。
Pediatr Res. 2025 Mar 17. doi: 10.1038/s41390-025-03999-x.
4
The impact of early surgical ventricular septal defect repair on parenting behavior and mother-child relationship: a prospective longitudinal study.早期室间隔缺损手术修复对养育行为及母婴关系的影响:一项前瞻性纵向研究。
Front Pediatr. 2024 Oct 23;12:1455310. doi: 10.3389/fped.2024.1455310. eCollection 2024.
5
Exploring Stress and Coping in Caregivers of Children with Pulmonary Vein Stenosis: A Mixed-Method Study.探索肺静脉狭窄患儿照顾者的压力与应对:一项混合方法研究。
Children (Basel). 2024 Aug 17;11(8):1008. doi: 10.3390/children11081008.
6
Perceived family-centered care and post-traumatic stress in parents of infants cared for in the paediatric cardiac intensive care unit.父母感知的以家庭为中心的护理与儿科心脏重症监护病房患儿父母的创伤后应激
Nurs Crit Care. 2024 Sep;29(5):1059-1066. doi: 10.1111/nicc.13094. Epub 2024 May 30.
7
Development and validation of a questionnaire to measure the congenital heart disease of children's family stressor.中文版问卷的开发与验证,用以衡量儿童先天性心脏病家庭应激源。
Front Public Health. 2024 May 1;12:1365089. doi: 10.3389/fpubh.2024.1365089. eCollection 2024.
8
School Readiness in Preschool-Age Children with Critical Congenital Heart Disease.患有严重先天性心脏病的学龄前儿童的入学准备情况
Pediatr Cardiol. 2025 Mar;46(3):569-579. doi: 10.1007/s00246-024-03460-6. Epub 2024 Apr 1.
9
Salivary Diurnal Cortisol Predicts Post-Traumatic Stress Symptoms in Parents of Infants With Congenital Heart Disease.唾液昼夜皮质醇可预测先天性心脏病婴儿父母的创伤后应激症状。
Biol Res Nurs. 2024 Jul;26(3):341-349. doi: 10.1177/10998004231224791. Epub 2024 Jan 2.
10
Mental Health Symptoms in Parents of Infants 3 Months After Discharge Following Neonatal Cardiac Surgery.新生儿心脏手术后 3 个月父母的心理健康症状。
Am J Crit Care. 2024 Jan 1;33(1):20-28. doi: 10.4037/ajcc2024404.

本文引用的文献

1
Stress and quality of life among parents of children with congenital heart disease referred for psychological services.因心理问题前来就诊的先天性心脏病患儿家长的压力与生活质量
Congenit Heart Dis. 2018 Jan;13(1):72-78. doi: 10.1111/chd.12547. Epub 2017 Oct 25.
2
Parenting Stress in Parents of Infants With Congenital Heart Disease and Parents of Healthy Infants: The First Year of Life.先天性心脏病婴儿父母与健康婴儿父母的育儿压力:生命的第一年
Compr Child Adolesc Nurs. 2017 Dec;40(4):294-314. doi: 10.1080/24694193.2017.1372532. Epub 2017 Oct 17.
3
The Pediatric Cardiac Intensive Care Unit Parental Stress Model: Refinement Using Directed Content Analysis.小儿心脏重症监护病房家长压力模型:运用定向内容分析法进行优化
ANS Adv Nurs Sci. 2017 Oct/Dec;40(4):319-336. doi: 10.1097/ANS.0000000000000184.
4
Biopsychosocial Predictors of Quality of Life Outcomes in Pediatric Congenital Heart Disease.小儿先天性心脏病生活质量结果的生物心理社会预测因素
Pediatr Cardiol. 2018 Jan;39(1):79-88. doi: 10.1007/s00246-017-1730-6. Epub 2017 Oct 4.
5
Sex differences in early-life programming of the hypothalamic-pituitary-adrenal axis in humans.人类下丘脑-垂体-肾上腺轴早期编程中的性别差异。
Early Hum Dev. 2017 Nov;114:7-10. doi: 10.1016/j.earlhumdev.2017.09.011. Epub 2017 Sep 15.
6
Salivary diagnostic markers in males and females during rest and exercise.男性和女性在休息及运动期间的唾液诊断标志物。
J Int Soc Sports Nutr. 2017 Aug 10;14:27. doi: 10.1186/s12970-017-0185-8. eCollection 2017.
7
Coping with the Stress in the Cardiac Intensive Care Unit: Can Mindfulness Be the Answer?应对心脏重症监护病房的压力:正念是答案吗?
J Pediatr Nurs. 2017 Nov-Dec;37:117-126. doi: 10.1016/j.pedn.2017.08.021. Epub 2017 Aug 12.
8
Evening salivary cortisol and alpha-amylase at 14months and neurodevelopment at 4years: Sex differences.14个月时的夜间唾液皮质醇和α-淀粉酶以及4岁时的神经发育:性别差异
Horm Behav. 2017 Aug;94:135-144. doi: 10.1016/j.yhbeh.2017.07.008. Epub 2017 Jul 26.
9
Mental Health Problems in Parents of Children with Congenital Heart Disease.先天性心脏病患儿父母的心理健康问题
Front Pediatr. 2017 May 8;5:102. doi: 10.3389/fped.2017.00102. eCollection 2017.
10
Family perception of unmet support needs following a diagnosis of congenital coronary anomaly in children: Results of a survey.儿童先天性冠状动脉异常诊断后家庭对未满足支持需求的认知:一项调查结果
Congenit Heart Dis. 2017 Dec;12(6):721-725. doi: 10.1111/chd.12473. Epub 2017 May 11.