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[风湿病患者疾病轨迹中诊断的意义:从不确定性到生活经历的中断]

[The meaning of the diagnosis in the illness trajectory of a person with rheumatic disease: From the uncertainty to biographical disruption].

作者信息

Carranza Rosa María Osorio

机构信息

Doctora en Antropología Social y Cultural. Profesora-Investigadora Titular, Centro de Investigaciones y Estudios Superiores en Antropología Social (CIESAS), México.

出版信息

Salud Colect. 2017 Apr-Jun;13(2):211-223. doi: 10.18294/sc.2017.1144.

Abstract

This article seeks to analyze the meaning of the medical diagnosis in the biographies of people who suffer from a rheumatic disease. Based in the ethnographic method, in-depth interviews were carried out among fifteen informants affected by different rheumatic conditions from the City of Barcelona. These interviews make it possible to see how the symptoms, dysfunctions or limitations experienced up until the definitive diagnosis can be reinterpreted in the presence of a model that explains the condition and gives it a name, attributing new meaning to the symptoms and establishing certain care and coping strategies. After a period of uncertainty, this definitive medical diagnosis allows for an enigmatic chronic condition from which the person is suffering to be deciphered, representing a turning point in the care trajectory that is understood as a biographical disruption redefining the past and future of the subject. However, it is often necessary for those affected to undergo a complex, erratic and uncertain itinerary to reach the final diagnosis, which is then identified retrospectively as a milestone in the illness experience.

摘要

本文旨在分析患有风湿性疾病的患者传记中医疗诊断的意义。基于人种志方法,对来自巴塞罗那市的15名患有不同风湿病症的受访者进行了深入访谈。这些访谈让我们得以看到,在出现一个解释病情并为之命名的模型时,直到最终诊断前所经历的症状、功能障碍或限制是如何被重新诠释的,症状被赋予了新的意义,并确立了某些护理和应对策略。经过一段时间的不确定性后,这个最终的医疗诊断能够解读患者所患的神秘慢性病,这代表着护理轨迹中的一个转折点,被理解为一种重新定义患者过去和未来的人生经历中断。然而,患者往往需要经历一个复杂、不稳定且不确定的过程才能得出最终诊断,而这个诊断随后会被追溯认定为疾病经历中的一个里程碑。

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