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互联网上的男科学:最受关注、颇具争议且往往是患者的主要信息来源。

Andrology on the Internet: Most wanted, controversial and often primary source of information for patients.

作者信息

Baunacke M, Groeben C, Borgmann H, Salem J, Kliesch S, Huber J

机构信息

Department of Urology, TU Dresden, Dresden, Germany.

Department of Urology, University Hospital Mainz, Mainz, Germany.

出版信息

Andrologia. 2018 Mar;50(2). doi: 10.1111/and.12877. Epub 2017 Aug 25.

Abstract

The Internet is an important source of health information with relevant impact on the physician-patient relationship. The German urological associations host one of the most comprehensive platforms for patient information on urological diseases. The aim of the study was to characterise its users and their specific needs. We invited users of the website www.urologenportal.de via pop-up to complete a 26-item online survey to evaluate health-related behaviour, distress and decision-making preferences. We received n = 551 complete responses. The most frequently requested topics were from the field of andrology (45.4%, n = 250). Of these, the most popular topics were circumcision (28.9%, n = 159) and erectile dysfunction (18.1%; n = 100). Overall, 216 users (39.2%) searched for information prior to their first doctor's appointment, and 89.3% (n = 492) preferred autonomous or shared decision-making. Users seeking information on circumcision were less frequently under urological treatment (p < .001), and more self-determined regarding healthcare decisions (p = .01). Circumcision was the only information on the website, which received relevant critical comments. Andrology was the most frequently requested urological topic. The vast majority of patients wanted to take self-determined healthcare decisions and searched for information prior to a doctor's appointment. This might have an impact on the physician-patient relationship and causes a high demand for good-quality health information websites.

摘要

互联网是健康信息的重要来源,对医患关系有相关影响。德国泌尿协会主办了一个关于泌尿疾病患者信息的最全面平台之一。本研究的目的是描述其用户及其特定需求。我们通过弹出窗口邀请网站www.urologenportal.de的用户完成一项包含26个项目的在线调查,以评估与健康相关的行为、困扰和决策偏好。我们收到了n = 551份完整回复。最常被请求的主题来自男科学领域(45.4%,n = 250)。其中,最受欢迎的主题是包皮环切术(28.9%,n = 159)和勃起功能障碍(18.1%;n = 100)。总体而言,216名用户(39.2%)在首次预约看医生之前搜索过信息,89.3%(n = 492)更喜欢自主或共同决策。寻求包皮环切术信息的用户接受泌尿外科治疗的频率较低(p <.001),在医疗保健决策方面更自主(p = 0.01)。包皮环切术是该网站上唯一收到相关批评意见的信息。男科学是最常被请求的泌尿学主题。绝大多数患者希望自主做出医疗保健决策,并在预约看医生之前搜索信息。这可能会对医患关系产生影响,并导致对高质量健康信息网站的高需求。

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