School of Nursing and Midwifery, Flinders University South Australia, GPO Box 2100, Adelaide, SA, 5000, Australia.
School of Health Sciences, Flinders University, South Australia, GPO Box 2100, Adelaide, SA, 5000, Australia.
BMC Palliat Care. 2017 Aug 29;16(1):43. doi: 10.1186/s12904-017-0225-9.
Completion of Advance Directives (ADs), being financial and healthcare proxy or instructional documents, is relatively uncommon in Australia. Efforts to increase completion rates include online education and prompting which past literature suggests may be effective. The aim of this randomized controlled trial was to assess computer-based online AD information and email prompting for facilitating completion of ADs by Australian Baby Boomers (b.1946-1965) as well as factors which may impede or assist completion of these documents by this generation when using the online environment.
Two hundred eighty-two men and women aged 49-68 years at the time of the trial were randomly assigned to one of 3 intervention groups: education module only; email prompt only; email prompt and education module; and a control group with no education module and no email prompt. The randomized controlled trial was undertaken in participants' location of choice. Randomization and allocation to trial group were carried out by a central computer system. The primary analysis was based on a final total of 189 participants who completed the trial (n = 52 education module only; n = 44 email prompt only; n = 46 email prompt and education module; and n = 47 control). The primary outcome was the number of individuals in any group completing any of the 4 legal ADs in South Australia within 12 months or less from entry into the trial. Frequency analysis was conducted on secondary outcomes such as reasons for non-completion.
Mean follow-up post-intervention at 12 months showed that 7% of overall participants completed one or more of the 4 legal ADs but without significant difference between groups (delta = 1%, p = .48 Prompt/Non-Prompt groups, delta = 5%, p = .44 education/non-education groups). Reasons offered for non-completion were too busy (26%) and/or it wasn't the right time (21%).
Our results suggest that neither email prompting nor provision of additional educational material online were sufficient to significantly impact AD completion rates for this generational cohort. Research with this cohort over longer periods of time exploring online preferences for engagement with ADs as they age may provide better insight into using this environment for ADs with this group.
Australian New Zealand Clinical Trials Registry ACTRN12616000425493 .
在澳大利亚,预立医疗指示(AD)的完成情况并不常见,这些指示是财务和医疗代理或指导文件。为了提高完成率,已经采取了一些措施,包括在线教育和提示,过去的文献表明这些措施可能是有效的。本随机对照试验的目的是评估基于计算机的 AD 信息和电子邮件提示对促进澳大利亚婴儿潮一代(1946-1965 年出生)完成 AD 的作用,以及当这一代人使用在线环境时,哪些因素可能会阻碍或协助他们完成这些文件。
在试验时年龄为 49-68 岁的 282 名男性和女性被随机分配到 3 个干预组之一:仅教育模块;仅电子邮件提示;电子邮件提示和教育模块;以及无教育模块和无电子邮件提示的对照组。随机对照试验是在参与者选择的地点进行的。随机化和分组由中央计算机系统进行。主要分析基于最终完成试验的 189 名参与者(n=52 个仅教育模块;n=44 个仅电子邮件提示;n=46 个电子邮件提示和教育模块;n=47 个对照组)。主要结果是在进入试验后 12 个月内,任何组别的个体完成南澳大利亚州的任何 4 份合法 AD 的人数。对次要结果(如未完成的原因)进行了频率分析。
干预后 12 个月的平均随访显示,7%的参与者完成了 1 份或多份合法 AD,但组间无显著差异(差值=1%,p=0.48 提示/非提示组,差值=5%,p=0.44 教育/非教育组)。未完成的原因是太忙(26%)和/或不是合适的时间(21%)。
我们的结果表明,电子邮件提示或在线提供额外教育材料都不足以显著影响这一代人的 AD 完成率。对这一年龄段的人群进行更长时间的研究,探索他们随着年龄增长对 AD 在线参与的偏好,可能会更好地了解如何在这一环境中为这一人群提供 AD。
澳大利亚新西兰临床试验注册 ACTRN12616000425493。