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严重精神疾病患者亲属的负担体验与感知需求——一项系统的元综合分析

Burdens experienced and perceived needs of relatives of persons with SMI - a systematic meta-synthesis.

作者信息

Wirsén Erik, Åkerlund Simon, Ingvarsdotter Karin, Hjärthag Fredrik, Östman Margareta, Persson Karin

机构信息

Faculty of Health and Society, Malmö University, Malmö, Sweden.

Department of Social Science, Faculty of Health and Society, Malmö University, Malmö, Sweden.

出版信息

J Ment Health. 2020 Dec;29(6):712-721. doi: 10.1080/09638237.2017.1370632. Epub 2017 Aug 30.

Abstract

: Close relatives of people with severe mental illness (SMI) experience problems known as family burdens. In addition, they may have their own needs for support, something often overlooked by the healthcare system. Meta-syntheses in this area may help explore the meaning of the experience of living with someone who has a SMI.: Our aim was to describe the burdens experienced and needs perceived on a daily basis by relatives to someone who has a SMI.: The databases PubMed, CINAHL, and PsychInfo were searched using a systematic search strategy. Studies were screened for relevance and quality was appraised. A meta-synthesis of nine qualitative studies was then conducted.: The nine studies discerned the following themes. Burden themes; Forced to carry a sometimes unbearable burden; Burdened by own ill-health and disrupted relationships; Distressed and stigmatized by society. Needs themes; strengthening protective factors; Skills and practical support greatly appreciated.: The burdens and needs of relatives of persons with SMI strongly influence their lives. They require relief from both practical and emotional burdens. Family interventions and other programs to support relatives should be encouraged with this knowledge in mind.

摘要

患有严重精神疾病(SMI)者的近亲会经历被称为家庭负担的问题。此外,他们自身可能也需要支持,而这一点常常被医疗保健系统忽视。该领域的元综合研究可能有助于探索与患有严重精神疾病者共同生活的经历的意义。

我们的目的是描述患有严重精神疾病者的亲属在日常生活中所经历的负担以及所感受到的需求。

使用系统检索策略对PubMed、CINAHL和PsychInfo数据库进行了检索。对研究进行相关性筛选并评估质量。然后对九项定性研究进行了元综合分析。

这九项研究识别出了以下主题。负担主题:被迫承担有时难以承受的负担;因自身健康问题和关系破裂而负担沉重;受到社会的困扰和污名化。需求主题:加强保护因素;非常感激技能和实际支持。

患有严重精神疾病者亲属的负担和需求对他们的生活有很大影响。他们需要从实际和情感负担中解脱出来。应铭记这一认识,鼓励开展家庭干预和其他支持亲属的项目。

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