医疗复杂性儿童远程医疗护理协调干预的健康相关生活质量结果：一项随机对照试验。
Health-Related Quality of Life Outcomes of a Telehealth Care Coordination Intervention for Children With Medical Complexity: A Randomized Controlled Trial.
出版信息
J Pediatr Health Care. 2018 Jan-Feb;32(1):63-75. doi: 10.1016/j.pedhc.2017.07.007. Epub 2017 Sep 1.
Abstract
The purpose of this study was to explore health-related quality of life (HRQL) and family impact in the context of an advanced practice registered nurse-delivered telehealth care coordination intervention for children with medical complexity (CMC). This was a secondary outcomes analysis of a randomized controlled trial with 163 families of CMC in an existing medical home. HRQL and family impact were measured using the PedsQL measurement model. Bivariate and analysis of covariance analyses were conducted to explore associations at baseline and the intervention effect over 2 years. Significant predictors of Year 2 child HRQL were baseline HRQL and the presence of both neurologic impairment and technology dependence. There was no significant intervention effect on child HRQL or family impact after 24 months. Care coordination interventions for CMC may need to incorporate family system interventions for optimal outcomes in a range of quality of life domains.
摘要
本研究旨在探讨在高级实践注册护士提供的远程医疗护理协调干预背景下，医疗复杂性儿童（CMC）的健康相关生活质量（HRQL）和家庭影响。这是对现有医疗之家中 163 个 CMC 家庭进行的随机对照试验的次要结果分析。使用 PedsQL 测量模型测量 HRQL 和家庭影响。进行了双变量和协方差分析，以探讨基线时的关联和 2 年的干预效果。第二年儿童 HRQL 的显著预测因素是基线 HRQL 以及存在神经损伤和技术依赖。24 个月后，儿童 HRQL 或家庭影响均无显著干预效果。针对 CMC 的护理协调干预措施可能需要纳入家庭系统干预措施，以在多个生活质量领域实现最佳结果。
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