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加拿大安大略省社区普通儿科医生对自闭症诊断的看法:一项定性研究

Community General Pediatricians' Perspectives on Providing Autism Diagnoses in Ontario, Canada: A Qualitative Study.

作者信息

Penner Melanie, King Gillian A, Hartman Laura, Anagnostou Evdokia, Shouldice Michelle, Hepburn Charlotte Moore

机构信息

*Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, ON, Canada; †Department of Paediatrics, University of Toronto, Toronto, ON, Canada; ‡Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, ON, Canada; §Department of Paediatrics, The Hospital for Sick Children, Toronto, ON, Canada.

出版信息

J Dev Behav Pediatr. 2017 Oct;38(8):593-602. doi: 10.1097/DBP.0000000000000483.

Abstract

OBJECTIVE

Community general pediatricians (CGPs) are a potential resource to increase capacity for autism spectrum disorder (ASD) diagnostic assessments. The objective of this study was to explore factors influencing CGPs' perspectives on and practices of providing ASD diagnoses.

METHODS

This qualitative study used a constructivist modified grounded theory approach. Participants included CGPs who had attended ASD educational events or had referred a child with suspected ASD to a tertiary rehabilitation center. Individual in-depth interviews with CGPs were recorded, transcribed, and coded. An explanatory framework was developed from the data. A summary of the framework was sent to participants, and responses indicated that no changes were needed.

RESULTS

Eleven CGPs participated. Assessment for ASD consists of 3 stages: (1) determining the diagnosis; (2) communicating the diagnosis; and (3) managing next steps after diagnosis. Each of these stages of ASD diagnostic assessment exists within an ecological context of child/family factors, personal CGP factors, and contextual/systems factors that all influence diagnostic decision making.

CONCLUSION

Community general pediatrician ASD diagnostic capacity must be considered within the larger context of ASD care. Suggestions to improve diagnostic capacity include preparing families for the diagnosis, changing CGP perceptions of ASD, providing community-based training, improving financial remuneration, and providing service navigation. Further study is needed to ensure that CGPs are providing accurate, high-quality assessments.

摘要

目的

社区普通儿科医生是提高自闭症谱系障碍(ASD)诊断评估能力的潜在资源。本研究的目的是探讨影响社区普通儿科医生对ASD诊断的看法和实践的因素。

方法

本定性研究采用建构主义改良扎根理论方法。参与者包括参加过ASD教育活动或已将疑似ASD儿童转诊至三级康复中心的社区普通儿科医生。对社区普通儿科医生进行的个人深度访谈进行了录音、转录和编码。从数据中建立了一个解释性框架。该框架的总结已发送给参与者,反馈表明无需修改。

结果

11名社区普通儿科医生参与了研究。ASD评估包括三个阶段:(1)确定诊断;(2)传达诊断结果;(3)管理诊断后的后续步骤。ASD诊断评估的每个阶段都存在于儿童/家庭因素、社区普通儿科医生个人因素以及背景/系统因素的生态背景中,所有这些因素都会影响诊断决策。

结论

必须在更广泛的ASD护理背景下考虑社区普通儿科医生的ASD诊断能力。提高诊断能力的建议包括让家庭为诊断做好准备、改变社区普通儿科医生对ASD的认知、提供基于社区的培训、改善经济报酬以及提供服务导航。需要进一步研究以确保社区普通儿科医生提供准确、高质量的评估。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/f2c5/5625971/767f87b7c0e1/jdbp-38-593-g001.jpg

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