Mueller Christoph, Wang Yuepeng, Brooks Alice, Morant Nicola, Sullivan Paul, Raymont Vanessa
a West London Mental Health NHS Trust , London , UK.
b King's College London , Institute of Psychiatry, Psychology and Neuroscience , London , UK.
Brain Inj. 2017;31(13-14):1863-1870. doi: 10.1080/02699052.2017.1346290. Epub 2017 Sep 25.
This qualitative study aimed to gain a better understanding of how medical and social services in the UK currently support patients with Traumatic Brain Injury (TBI) in the community. Furthermore, we explored patients' wishes and expectations of a newly established TBI clinic.
We conducted semi-structured interviews with 10 patients with mild-to-severe TBI. The interview schedule was designed to cover contacts with health services, information provided, post-discharge support, current social circumstances, expectations from the newly established brain injury service and participants' desires for any new service. Transcripts were analysed using a thematic analysis.
Participants highlighted the importance of the human component of their care and of fostering trusting relationships. This validates patients' experience and helps them to regain confidence. Follow-up and education are important for patients and relatives through all stages of care, regardless of the severity of the injury. Patients strive for meaningful lives and need to be supported to engage in activities. They need hands-on support, particularly with the UK's bureaucratic welfare system.
There is much room for improvement in the TBI community care in the UK. Our findings support the development of a holistic service that can address the multifactorial problems which the patients with TBI and their families face.
这项定性研究旨在更好地了解英国目前的医疗和社会服务如何在社区中为创伤性脑损伤（TBI）患者提供支持。此外，我们还探讨了患者对新设立的TBI诊所的愿望和期望。
我们对10名轻度至重度TBI患者进行了半结构化访谈。访谈提纲旨在涵盖与医疗服务的接触、提供的信息、出院后的支持、当前的社会状况、对新设立的脑损伤服务的期望以及参与者对任何新服务的需求。使用主题分析法对访谈记录进行了分析。
参与者强调了护理中人文因素以及建立信任关系的重要性。这证实了患者的经历，并帮助他们重拾信心。在护理的各个阶段，随访和教育对患者及其亲属都很重要，无论损伤严重程度如何。患者追求有意义的生活，需要得到支持以参与各种活动。他们需要实际的帮助，尤其是在应对英国繁琐的福利系统方面。
英国TBI社区护理有很大的改进空间。我们的研究结果支持开发一种全面的服务，以解决TBI患者及其家庭面临的多因素问题。
