Wang Ching-Lin, Kuo Li-Min, Chiu Yi-Chen, Huang Hsiu-Li, Huang Huei-Ling, Hsu Wen-Chuin, Lu Cheng-Hsien, Huang Tzu-Hsin, Huang Shan, Shyu Yea-Ing Lotus
School of Nursing,College of Medicine,Chang Gung University,Taoyuan,Taiwan.
Department of Gerontological Health Care,College of Nursing,National Taipei University of Nursing and Health Sciences,Taipei,Taiwan.
Int Psychogeriatr. 2018 Mar;30(3):375-384. doi: 10.1017/S1041610217001764. Epub 2017 Sep 26.
ABSTRACTBackground:To develop a theoretical model explaining the longitudinal changes in the caregiving process for family caregivers of persons with mild cognitive impairment (MCI) in Taiwan.
A longitudinal, grounded theory approach using in-depth face-to-face interviews and an open-ended interview guide. We conducted 42 interviews over a two-year period; each participant was interviewed at least once every six months. All participants were interviewed in their home. The participants total of 13 family caregivers of persons with MCI.
One core theme emerged: "protective preparation." This reflected the family caregiving process of preparation for a further decline in cognitive function, and protection from the impact of low self-esteem, accidents, and symptoms of comorbidities for the family member with MCI. Protective preparation contained three components: ambivalent normalization, vigilant preparation, and protective management.
Interventions to help family caregivers manage the changes in persons with MCI can reduce caregiver burden. Our findings could provide a knowledge base for use by healthcare providers to develop and implement strategies to reduce caregiver burden for family caregivers of persons with MCI.
摘要背景：构建一个理论模型，用以解释台湾地区轻度认知障碍（MCI）患者家庭照顾者在照顾过程中的纵向变化。
采用纵向扎根理论方法，运用深入的面对面访谈和开放式访谈指南。在两年时间内进行了42次访谈；每位参与者每六个月至少接受一次访谈。所有参与者均在其家中接受访谈。参与者共有13名MCI患者的家庭照顾者。
出现了一个核心主题：“保护性准备”。这反映了家庭照顾过程中为认知功能进一步衰退所做的准备，以及保护MCI家庭成员免受自卑、事故和合并症症状影响的过程。保护性准备包含三个组成部分：矛盾的正常化、警惕的准备和保护性管理。
帮助家庭照顾者应对MCI患者变化的干预措施可减轻照顾者负担。我们的研究结果可为医疗保健提供者提供知识基础，以制定和实施减轻MCI患者家庭照顾者负担的策略。
